LACK OF APPETITE

[pbcdisease]

Hi hope you all had a good xmas, i haven't written anything on her for a long time, my question is about 5 months ago i really lost my appetite, in the sense that food bores me most of the time i really don't know what to cook for meals occasionally i can enjoy a meal but most of the time i feel i may just as well eat a sandwich or bowl of cereal without the bother of preparing a meal i know I've no interest in cooking, although i do for my husband, although i can still eat something sweet and enjoy. I am 65 and was diagnosed with PBC in 2009. I take urso x 4 tablets per day, get fatigue, dry eyes and mouth and occasional bouts of itching but my alkaline phosphates have improved a lot since being on URSO. Does anyone else have lack of appetite?

[kimphoebe]

Hi there

Same with me, I have no

Interest in food atol even though I cook for my husband and son. Mostly just have some toast or sandwich. It's not ideal but what can you do.

[genj65]

I have lack of appetite here and there just don't want to eat or nothing sounds good. Since starting Ursodoil several months ago I don't really grave sweets either.

My itching is all the time I tried everything. Just weeks ago my University of Michigan doctor had me try sarna lotion it works to calm my itching a bit but I pretty much have to take benadryl every night to get sleep from constant itch. I prefer children's liquid and my doctor is okay with me taking that.

Goodluck with your appetite.

😉😊

[Pamela4475]

I wish I did.... seems I am hungry all the time... I discovered a turkey meat loaf but you really have to season turkey.....but I am sick of eating low carb, no sugar, low fat, and only fish chicken or turkey 🙄

[gwillistexas in reply to Pamela4475]

I’m hungry most of the time too. I had a Chic-Fil-a sandwich around 12:45 today. Hungry at 2:00. It’s crazy. But I’m thankful to still have a good appetite. 😊

[Hidden in reply to gwillistexas]

Sue the makers! It's not ok to call it Chic-fFl when it doesn't fill a chick? x

[gwillistexas in reply to Hidden]

Funny!😆

[Hidden in reply to Pamela4475]

Do you like almonds? If you keep some in the fridge, (whole, unblanched, unsalted or sugared) and have 2 or 3 or 4 for snack or at end of meal they seem to shut up your craving for any food. I don'tknow the science of it but it works well for me.

[gwillistexas in reply to Hidden]

Yes, I love almonds. There isn’t much I don’t like, lol!

[Vivaldii]

I have lost my appetite in the last year or so I have just been diagnosed with pbc .And when I am hungry takes very little to get full

[Beejoyful]

I also have loss of appetite. My dr thinks it’s connected to other issues though.

[pbcdisease]

thank you all for your replies, its hard to know what is related to PBC or no. HAPPY NEW YEAR EVERYONE X

[Shashwoo]

Hello,

I am very newly diagnosed (Christmas Eve) I am from the UK. I am dropping a lot of weight too which isn't good since I am already very thin. I guessed it was either from the PBC or from the Sjogren Syndrome I have but It's good to know I am not alone in these symptoms. xx

[gwillistexas in reply to Shashwoo]

Shashwoo...welcome to our little corner😊. This is a great place to be to get answers, support & love. I wanted to ask since you mention weight loss. Do you not have a good appetite? I have lost weight too & was small to start with. I have a crazy appetite so my weight loss isn’t because I’m not hungry.

[Shashwoo in reply to gwillistexas]

I used to have a good appetite but now I would rather just have a bowl of cereal than a full meal. Must be something to do with the AI conditions.

With having Sjogrens I've found that my tastes have changed, I can't eat anything that is too sweet, salty, spicy etc. It totally burns my tongue and mouth so I've had to adapt to a very bland menu. xx

[Hidden in reply to Shashwoo]

Could you enjoy shakes? Banana, avocado, cashew nut, any milk, anything bland you fancy. Drinking these with a straw can help if your mouth is sore or sensitive. If I go to supermarket it takes f-o-r-e-v-e-r because when I see the food none appeals, I can't pick anything up, then I'd be wanting chocolate at the checkout because I'm exhausted from the waste of energy. I have the food delivered now. It's easier to select things from a screen with a keyboard. If this isnt for you, I hope you find a way to slowly get some appetite back. Best wishes

[Maureen25]

Hi I am the same, lost 3 stones have no interest in food, porridge will do as I know I have to eat. I can afford to lose the weight so won't worry till it get serious. Sometimes I just cannot swallow, food comes back up.