Hi all
Has anyone been transferred to a top consultant for them to try a new drug as ursalk is not working
Pbc: Hi all Has anyone been transferred to a... - PBC Foundation
Pbc
Written by
janine541
To view profiles and participate in discussions please or .
4 Replies
•
Hi there
Yes I was transferred to Another hospital and I am on a clinical trial at the moment. I am classed as a nonresponder to uso so my local dr didn't know what to do next. All bloods are normal now after a year on the trial.
My new hepatologist added bezafibrate to my Ursofalk and my numbers finally came down. I am a non responder to Urso for years too.
There is a lot of positive research on finrates and PBC! Google bezafibrate or fenofibrate and PBC.
Good luck!
Yes, I was placed on Ocaliva plus my Urso around two years ago. I was transferred to Indianapolis to the IU medical hospital university. With the combination of my GI & my heptologist at IU we've managed to get me stabilized at stage 4 PBC with varicies & stage F4 cirrhosis. Honestly, the change has been awesome with my numbers. My ALK Phos is still a little elevated but everything else had fell into place. Thankful for those who were a part of the trial studies with Ocaliva. This combination of meds have been God sent.
Stay Strong ❣️
Shannon
Thanku
Not what you're looking for?
You may also like...
PBC
Hi last week I was diagnosed with PBC I initially went to doctors 10 years ago with upper right...
Pbc
Just had the best comment by far
A work colleague ask what I was doing tonight. I replyed nothing...
PBC
Just found out I have PBC and just started on ursofalk on Monday night.. I have been having bloods...
PBC
Went to my specialist on 9th May, delighted to hear that my blood test results have greatly...
Pbc
My name is anne i am 59 years old
Have positive amas
Referred to hepatologist for further...
PBC
Pbc
