Grateful for this forum: Hi All So it's... - PBC Foundation

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Grateful for this forum

EileenUSA profile image
28 Replies

Hi All

So it's Thanksgiving time in America and I just wanted to say how grateful and thankful I am for this fantastic community. And a special acknowledgement to Robert and the PBC Foundation team that sponsor this forum and advocate so brilliantly for us PBC folks.

This forum is exceptional in several ways-

the tone and the respect in the posts,

the factual information that gets discussed and provided,

the ease at which you can search a topic and find many women posting similar experiences etc..

the quality of the folks here- super supportive and caring.

Having a rare chronic disease is no picnic- and so thank YOU all who participate here and share the ups and downs and information and support. I appreciate it. Truly.

Love to all.

Written by
EileenUSA profile image
EileenUSA
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28 Replies
Ktltel profile image
Ktltel

❤❤❤

4pjx__ profile image
4pjx__

Namaste!

gwillistexas profile image
gwillistexas

EileenUSA...Happy Thanksgiving to you & your family as well. 😉🦋🦃

Ellewoods33 profile image
Ellewoods33

Happy Thanksgiving to all. I’m thankful for each of you and that God continues to bless us with another year of life.

gwillistexas profile image
gwillistexas in reply to Ellewoods33

Amen🙏🏻🦋

Happy thanksgiving to you all, such a lovely post Eileen the sentiments are echoed across the globe.

Yankeerose3 profile image
Yankeerose3

Thanks. Happy thanksgiving to you and everyone else

Happy Thanksgiving to you and your family Eileen

IAmTheGlue profile image
IAmTheGlue

Happy Thanksgiving! I am also eternally grateful for the support that I have received here. Enjoy the holiday!

GrittyReads profile image
GrittyReads

Happy Thanksgiving,

I second all the 'thanks' to the 'PBC F'. all the lovely people on here, especially our US pals !

Take good care of yourself Eileen - while also remembering to have lots of fun.

Gritty xx

EileenUSA profile image
EileenUSA

Thanks Gritty! It's great to have friends across the pond. 😀 Regarding having lots of fun- one "gift" that PBC has given me is that I don't take good days for granted and I have really shifted priorities..

That being said...

Right now I'm having a small pity party as I have a bad upper respiratory virus that's been keeping me down. I had to cancel going out to my family thanksgiving day meal. But I'm really coughing and congested so best to not get anyone else sick too..

just sad to miss out on family gathering. 😢

gwillistexas profile image
gwillistexas in reply to EileenUSA

So sorry EileenUSA. I’ve fought that mess for 2 weeks. Finally on the downhill slide. It’s apparently a stubborn virus. Take care 🌷🙏🏻

EileenUSA profile image
EileenUSA in reply to gwillistexas

thanks Gail. I'm on day 10 of this virus.. they say its viral not bacterial. My phlegm and cough are greatly reduced but I'm still feeling "off"

Ugh. I'm just "tired" from having the virus.. had to skip family thanksgiving gathering.. but it was for the best. too many cooties in a large group gathering and I didn't want to pick up an additional strain of cough/cold/respiratory. I have to keep reminding myself- this too will pass.

gwillistexas profile image
gwillistexas in reply to EileenUSA

EileenUSA...hopefully yours is on the way out. My congestion has lasted longer than ever before with respiratory. I am on another antibiotic because Dr could still hear something. But if it’s viral then no wonder drugs aren’t killing it. I haven’t really felt too bad through the whole thing, but the heaviness in my head & all the coughing made me tired. I know it’s harder for us to kick this stuff or any other illness. I hope you’re on the mend & feel much better soon. Take care😊🦋

EileenUSA profile image
EileenUSA in reply to gwillistexas

Hi

sounds like we are in a parallel universe with this bug. I too have NEVER had a respiratory/congestion thing like this that lasted this long. And like you say-- I've been able to do some things- I mean, I'm not bedridden- but I am dragging and dragging.. I have been able to go out for a 30 minute walk the past 4 days-- I had to be active somehow.. it felt good to move ( I bundled up with scarf across face etc) Today chicago weather is not as cold.. thankfully.

I might go back in tomorrow to get checked.. I dunno. It's just an extreme bronchitis type thing.. and like you the coughing and blowing out mucous has me exhausted. I'm doing steam, tea, mucinex, rest, water... bla bla bla... thanks for the encouragement. I really appreciate it.

gwillistexas profile image
gwillistexas in reply to EileenUSA

Eileen...I was getting a little concerned why it wouldn’t go away. Now I know it’s not just me. Yes, I try & be sure to not let cold air get to my bronchial area. We’re actually having very nice weather for few days. Take care of yourself. If you go back to Dr let me know what he says. 🤗

ninjagirlwebb profile image
ninjagirlwebb in reply to gwillistexas

Me, three! I had this cough issue & sore throat about 6 weeks, thinking it would go away. Anyway, called my pcp for an appointment this morning & got a call back this pm. Turned out the office was closed today, but my doctor actually called me back & asked if I could wait until Monday to see her & gave me a choice of appointment times. Extremely pleased with this new doctor as my ex doctor went concierge on me. My hepatologist recommended her to me. Must remember to thank him again.

ninjagirlwebb profile image
ninjagirlwebb in reply to ninjagirlwebb

Doctor said it was post nasal drip from possible allergies. Told me to use zrytec, mucinex & flonase plus get an air filter.

gwillistexas profile image
gwillistexas in reply to ninjagirlwebb

ninjagirlwebb...That’s good news. Hopefully those things will take care of it. 😊

ninjagirlwebb profile image
ninjagirlwebb in reply to gwillistexas

She said next time maybe she’ll run some allergy tests when she runs blood work. But she didn’t want to poke me just for that this time. 😊

PBCRobert profile image
PBCRobertPartner

Thank you for your kind words.

We do try our best but you all make this what it is.

I hope you are feeing better soon...

Yours, as ever,

Robert

gwillistexas profile image
gwillistexas

ninjagirlwebb...G’morning ☕️. I’m sorry you’ve been fighting this mess too. 6 weeks is quite a run of it. Must be one tough little germ, to linger the way it has. The weekend seems terribly long when you’re not well & waiting for Monday. It’s great you are pleased with your new dr. Makes such a difference. Hope you feel better soon. 😊🌷

ninjagirlwebb profile image
ninjagirlwebb in reply to gwillistexas

Thank you!

I feel good except for the on & off cough sessions. Just want to make sure I am okay by the doctor. Plus I also want to give her a general update on my labs etc. I like my doctors to have updates on me so that they know who I am.

Hope you get better soon!

M-

gwillistexas profile image
gwillistexas in reply to ninjagirlwebb

ninjagirlwebb...that’s how it has been with me & no fever to my knowledge. Strange stuff. Thank you! Take care😊🦋

EileenUSA profile image
EileenUSA

Here's a blurb on "acute bronchitis"--

Acute bronchitis often develops three to four days after a cold or the flu. It may start with a dry cough, then after a few days the coughing spells may bring up mucus. Most people get over an acute bout of bronchitis in two to three weeks, although the cough can sometimes hang on for four weeks or more.

gwillistexas profile image
gwillistexas in reply to EileenUSA

EileenUSA...Thanks!🦋

Skypony profile image
Skypony

Eileen, thanks to you too for being so supportive of others! It is indeed a wonderful forum X

EileenUSA profile image
EileenUSA

Skypony thank you. It really is a great forum. Quality people, easy to use format AND access to solid info on PBC treatments, diagnosis and research. Thank YOU for being part of it!

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