High Platelet count: Had blood work done this... - PBC Foundation

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High Platelet count

kp1234 profile image
5 Replies

Had blood work done this morning for a hepatologist appointment next week. Less than 3 hours later got a call from the Dr.'s office; high platelet count (I haven't seen the numbers yet). The recommendation is that I see a hematologist. Any one else have high platelet count? I checked and there were 40 blood tests done this morning.....I was only worried about ALP (was still over 500 after almost 9 months of Urso). Looking for experience with HIGH platelet count. I know my spleen is enlarged (slightly) and have had one swollen lymph node for almost a month. Thanks!

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kp1234
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Ellyne profile image
Ellyne

The hematologist will run a battery of tests that are different from the hepatologist and theses results will reveal why it is happening. I was sent to a hematologist because a have something called a simple chain in my blood related to antibodies. This was picked up by my thyroid dr and the hematologists did extensive testing and although I do have this chain and excessive antibodies the ratio is still within normal . Bottom line, I have to see a hematologist once a year. So, don’t worry until you have to!

Liverette profile image
Liverette in reply toEllyne

I have had elevated platelet count before and it was due to an infection. My cat had scratched me and I developed swollen lymph nodes and also had fever. The antibiotics took care if the fever and the infection but it took a while to get my platelets down and the doctor said it was due to the infection.

kp1234 profile image
kp1234

Platelet count is at a "critical" level. Hepatologist (from the regional medical center) suggested a referral to a hematologist--somehow that has changed to an Oncologist. There are 2 Hematologist/oncologist specialists at my local clinic--but the referral isn't for me to see either of them......now I'm very worried. My ALP has also gone up to 580---seems like I just can't get a break!

DoreenD profile image
DoreenD

Hi, I did have high platelet counts for years and my gastro said it was because of the PBC. I had to transfer to a different gastro doctor and he did more tests and put me on aspirin. After about 7 years I was sent to an oncologist and the high platelets were a sign of a slow growing blood cancer called Polycythemia Vera so was put on a cancer drug. Maybe you should get your doctor to check further to rule it out. Best wishes Doreen

kp1234 profile image
kp1234 in reply toDoreenD

Thank you Doreen. Like so many of us...all I want are answers.

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