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PBC Foundation

9,468 members • 8,283 posts

All posts for May 2017

Appetite

Only been on urso a week but I don't seem to have much appetite, anyone else find this?

Only been on urso a week but I don't seem to have much appetite, anyone else fin...

Quilter1

•7 years ago

8 Replies

Survey

I just took a survey when I signed into my e-mail. Was it Legit ?

Ohio82

•7 years ago

5 Replies

Differences in prescription

Hi. I'm sure I read on here somewhere that the different brands of URSO had different mixes/blends in them. I was originally put in ursofalk and have got past...

Hi. I'm sure I read on here somewhere that the different brands of URSO had diff...

Angel_b

•7 years ago

8 Replies

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Adderall or Ritalin for brain fog/mood stabilizer and fatigue

Has anyone been put on Adderall or Ritalin for these side effects? My nurse wants put me on Prozac. I know that I am struggling with this just as all of are on...

Has anyone been put on Adderall or Ritalin for these side effects? My nurse want...

cfsummerford72

•7 years ago

32 Replies

PBC with possible AIH overlap. Confused, and impatient.

Hey, This is my first post. Ive never done anything like this, but I feel like there is a wealth of info among this group. I have recently had a liver biopsy...

Hey, This is my first post. Ive never done anything like this, but I feel like ...

Terralynn

•7 years ago

6 Replies

Still feeling low & confused

I'm one week in to my diagnosis, reading as much info as I can & still trying to get my head round it. Countless friends saying 'at least now you know what is...

I'm one week in to my diagnosis, reading as much info as I can & still trying to...

Quilter1

•7 years ago

37 Replies

What to take for nauseous

Today is bad nauseous. I believe that I'm at the beginning of week 3 with azathioprine. What can I take I'm trying to figure out how to use the portal to...

Today is bad nauseous. I believe that I'm at the beginning of week 3 with azathi...

Hidden

•7 years ago

21 Replies

very dry raised brown spots

Hi Guys, I would like to know if any of you good people have had a lot of brown spots on your skin mine are mostly on my legs and arms and look terrible and I...

Hi Guys, I would like to know if any of you good people have had a lot of brown ...

susanashworth

•7 years ago

7 Replies

Liver Hot Flash?

I'm 50 and for the last 10 years I've been getting what I called "tropical breezes" lol Not a Hot Flash but a warming sensation that comes over me with no...

I'm 50 and for the last 10 years I've been getting what I called "tropical breez...

tonia66

•7 years ago

9 Replies

Learning to live with PBC

I am having problems with my saliva glands hurting. Dry eyes, dry mouth

jtbowen

•7 years ago

3 Replies

South African

I live in Johannesburg, South Africa. 59 year old female and diagnosed with PBC about 5 years ago, but had elevated nearly 10 years prior to diagnosis. Liver...

I live in Johannesburg, South Africa. 59 year old female and diagnosed with PBC ...

TaylorMatthew

•7 years ago

6 Replies

Urso, weight gain & mineral supplements

Hi, I've been taking 500mg of urso a day since Dec & my weight has gone up by 10lbs! Is this a normal side affect? And please tell me it will settle back...

Hi, I've been taking 500mg of urso a day since Dec & my weight has gone up by 10...

Melani1

•7 years ago

9 Replies

Side Effects from Urso

I has anyone had side effects from Urso I have had Acid reflex and Back pain for some months now Run out of Urso and had to wait 5 days for more in this time...

I has anyone had side effects from Urso I have had Acid reflex and Back pain fo...

Roccadave

•7 years ago

10 Replies

Food advice!

I was diaganosed about 4 years now and apart from itching and tired seem to doing ok, still manage to run round after 2 kids,work 2 jobs and go to the gym,...

I was diaganosed about 4 years now and apart from itching and tired seem to doin...

Nikkipinch

•7 years ago

19 Replies

Spider angiomas

Hi - male, aged 41 had pbc around 6 years. I have recently noticed what appear to be small broken blood vessels on the skin over my ribs. Having researched...

Hi - male, aged 41 had pbc around 6 years. I have recently noticed what appear t...

Aussie05

•7 years ago

3 Replies

coconut oil

last Bet Facts magazine i read that coconut oil taken daily had helped a patient with PBC i started taking a dessertspoonful melted with Orange Juice daily and...

last Bet Facts magazine i read that coconut oil taken daily had helped a patient...

Biddyb

•7 years ago

9 Replies

healthy eating with AIH and PBC

ANYONE COME ACROSS A LIST OF FOODS THAT ARE GOOD TO EAT FOR LIVER COMPLAIN. also any sufferers out there have joint aches and pains.

ANYONE COME ACROSS A LIST OF FOODS THAT ARE GOOD TO EAT FOR LIVER COMPLAIN. also...

Biddyb

•7 years ago

2 Replies

Newly diagnosed

Morning, I have just been diagnosed with PBC this week, had raised LFT's in routine blood test, ultrasound showed ??cirrhosis so I was referred to hospital....

Morning, I have just been diagnosed with PBC this week, had raised LFT's in rout...

Quilter1

•7 years ago

7 Replies

Is sugar bad for pbc?

Has anyone noticed a difference in their liver health if they eat sugar? I have read to stay away from sugar. How about bread and carbs?

Has anyone noticed a difference in their liver health if they eat sugar? I have ...

Vera70

•7 years ago

18 Replies

Just diagnosed with pbc

Hello all. I am 46 and female. I was just diagnosed with pbc. My ama level is 2.3. My biopsy shows inflammation in liver but no scarring yet so... (early...

Hello all. I am 46 and female. I was just diagnosed with pbc. My ama level is 2....

Vera70

•7 years ago

6 Replies

PBC? High ALP and negative AMA

I am new to this site, just a month, but have found it to be very helpful. I am 51 and last month my ALP came back high (215) during routine blood work. My...

I am new to this site, just a month, but have found it to be very helpful. I am ...

musicman2017

•7 years ago

3 Replies

Fatigue vs depression

Hello everyone, I suffer from the dreaded extreme fatigue and I've recently been to my GP three times explaining that I have severe fatigue and she keeps...

Hello everyone, I suffer from the dreaded extreme fatigue and I've recently be...

Hidden

•7 years ago

15 Replies

Bile duct

Hi can anyone tell me what does it actually mean if your common bile duct is quite dialated ? And does it go hand in hand with with PBC ? Thank you 😊

Hi can anyone tell me what does it actually mean if your common bile duct is qui...

Hidden

•7 years ago

2 Replies

New to PBC and terrified

Has anyone out there been diagnosed with PBC when they were already at the cirrhosis stage? If so, has the Ursidol worked for you? I've just been diagnosed...

Has anyone out there been diagnosed with PBC when they were already at the cirrh...

4pjx__

•7 years ago

37 Replies

PBC

Went to my specialist on 9th May, delighted to hear that my blood test results have greatly improved the 3 months I am on URSO.....Don't go back to see him now...

Went to my specialist on 9th May, delighted to hear that my blood test results h...

shebalion

•7 years ago

10 Replies

Fatigue pattern?

Hi there. I'm just wondering if anyone experiences one day fatigue = 2/3 days complete melt down from exhaustion. I seriously have to prepare for a day/eve...

Hi there. I'm just wondering if anyone experiences one day fatigue = 2/3 days co...

Hidden

•7 years ago

4 Replies

Advice needed please!

Hi there, Just wondered if anyone has any advice as to how to cope with moving house. Due to move in August, about 2 hour journey from where we live now and...

Hi there, Just wondered if anyone has any advice as to how to cope with moving h...

Caroline-12

•7 years ago

4 Replies

Fenofibrate?

Hi- it's been a while since I've posted but hoping you can help. I have to see my consultant in 2 weeks and want to be prepared. He has twice put me on...

Hi- it's been a while since I've posted but hoping you can help. I have to see ...

Jo53

•7 years ago

4 Replies

Itching

Hi can anyone help please ? I have PBC and I'm going mad with the itching , been applying calamine lotion as I'm not sure if there is medication I can have to...

Hi can anyone help please ? I have PBC and I'm going mad with the itching , been...

Hidden

•7 years ago

16 Replies

Urso, side effect jawl pain?

So a few weeks ago I started my Urso regime. 500mg twice daily. I do see a sliwing of the itch. I think it is causing some constipation . But what is...

So a few weeks ago I started my Urso regime. 500mg twice daily. I do see a sliwi...

cfsummerford72

•7 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2017

Appetite

Survey

Differences in prescription

Adderall or Ritalin for brain fog/mood stabilizer and fatigue

PBC with possible AIH overlap. Confused, and impatient.

Still feeling low & confused

What to take for nauseous

very dry raised brown spots

Liver Hot Flash?

Learning to live with PBC

South African

Urso, weight gain & mineral supplements

Side Effects from Urso

Food advice!

Spider angiomas

coconut oil

healthy eating with AIH and PBC

Newly diagnosed

Is sugar bad for pbc?

Just diagnosed with pbc

PBC? High ALP and negative AMA

Fatigue vs depression

Bile duct

New to PBC and terrified

PBC

Fatigue pattern?

Advice needed please!

Fenofibrate?

Itching

Urso, side effect jawl pain?

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