I have been diagnosed with pbc a month now (no symptoms, lfts still normal at this point - diagnosed by AMA and biopsy, stage 0/1)
I am 42 now and am finding it hard to get my head around "losing" my future, as well as not knowing how much good time I have left. I imagined an active retirement with my husband enjoying travel, hiking, skiing etc, which we enjoy.
I've been wondering whether pbc symptoms are severe in everyone - are there any out there who've had pbc for a number of years but who are still able to remain active and not driven crazy by itching? Do you have what you consider a "good" quality of life?
Thanks for helping me adjust...