Do any of you PBCers have a child with an autoimmune disease?

[terri2109]

[Dibbs64]

Hi, yes 3 of mine unfortunately have auto immune diseases .arthritis, Crohn's and psoriasis

Deb

[terri2109]

Oh really? my last daughter who is 15 was diagnosed at the age of 9 with Psoriatic arthritis, I think this is linked, when did you get diagnosed? I was only diagnosed in September but have had high lft's since 2003, I have also had the pain in the right side since she was born, I have had the tiredness and aching for about 5 years. would be interesting to find out what percentage of people are in the same position, bless you and your kids, xxx

[LouWooda in reply to terri2109]

Hi, I myself have psoriatic arthritis but my paternal Grandmother had rheumatoid arthritis. They are both autoimmune but totally different illnessess x

[skywalker]

Scared to have them checked!

[LouWooda]

Autoimmune disease can run in families. My paternal side of the family are riddled with them. I have PBC and psoriatic arthritis, my Gran had rheumatoid arthritis, my brother had juvenile ra, Uncle with Crohns, 2 Cousins with Diabetes and my youngest Daughter has Psoriasis x

[Hidden]

HI

My daughter has Thyroid, 2 Grandchildren Coeliac disease, Son has Psoriasis, Sister has Fibromyalgia and my Dad had MS

[flora]

hi terri yes i have three children all adults now they all have psoriasis,middle child boy has type 1 diabetis .youngest girl has psoriatic arthritis.i have a few underactive thyroid, pbc, sjogrens and ra

[smgrcj]

I have 3 daughters, all adults and none of them have that I know of, however I haven't told them I have PBC in case the worry about it

[LouWooda in reply to smgrcj]

Awww You should maybe consider telling them, you may be surprised at their reaction, as they are adults and they may cope with the news better than you think. Telling my family was difficult, but also a blessing, as they all understand why I am sometimes so very tired a lot of the time and they are supportive and really help me when I need it. My children were 13 and 3 at the time and are now 23 and 13. I can't help but think you would have a great support network if your family knew, but I also understand if you are frightened that they will worry too much. I feel for you, coping with this on your own x

[terri2109]

I totally agree, I have four daughters ranging in age from 15 - 25 and they are all really supportive, tell them, its really good to have as much support as possible, imagine if they hadn't told you if something happened to them, how you'd feel. xxxx

[TracyLou]

My son has a chromosome disorder, all of my symptoms went away when I was pregnant with him but came back full blast after.

[ZiggyBean]

My mother and I both have PBC/AIH overlap