So I've been diagnosed with PBC, have started Urso and am going back to see my consultant on Tuesday where he will have the results of blood tests (pre-urso), bone density scan and liver biopsy. I have a thousand questions (I'm trying to repress the urge to grab him by the tie and screech "AM I DYING, WHEN WILL I NEED A LIVER TRANSPLANT?!?" at him), but find the whole situation very overwhelming. I'm going to try and write a list so I don't just turn into a quivering heap. What do people think the real questions are? Apart from some discomfort on upper right side (decreasing with URSO) I don't have any extreme fatigue / itching / other symptoms at the moment.
Thanks in advance for your support.