Just before I was 40, as my life was just about to begin, back in 2007 I took poorly with gall stones, and I had my gall bladder removed in 2008. the gall bladder surgery was horrific, my surgeon said it was the worst gall bladder operation he had to do in decades and instead of taking 20 mins it took closer to 6 hours. Later that same year I was back in hospital while they tried to figure out what was up with me as I still had all the symptoms. At sometime I got left alone with my medical records and as you do I had a peek. To my surprise the notes on my operation were written in plain good ol english.
My operation started with keyhole, but they had to abort that idea when they could not find my gall bladder. Opening me up like a parcel they discovered that my gall bladder was now concealed due to liver fibrosis, where my liver had seen it as an infection and covered my gall bladder in scar tissue meaning they had to proceed very slowly with a lot of care, working blind. As such rather than actually remove the gall bladder they did some magic jiggery pokery and sucked the bad stuff out, slicing, tidying off until I was left with minimal gall bladder and minimal stones in my biliary ducts. A bit like a roadside repair, enough to get me going again and as long I was willing to put up with things not being perfect it would sort of do.
For a long time before that, and since, I have been accused of using a sunbed, wearing fake tan, and being a bit orange and being able to "tan easily" because I am a funny colour. For the record, I am a fat, unattractive, balding male with motivational issues. And in case anyone does not believe me my motivational issues include forgetting to trim that bunch of wires growing out my ears and nose. A sunbed would fool no one and if fake tan was the answer to my desirability issues then I fear I would have to buy in bulk.
I have osteoarthritis especially in my lower spine, I had always had some back complaints but apparently the arthritis was easy to see on the xrays I was having at the time. It has progressed to the point of not being able to walk far at all, and always using a walking stick (or pimp cane as my eighteen year old step daughter calls it)
My skin itches like crazy at night, like a dozen spiders on my skin, no matter where I sleep. sometimes when I am awake sitting here I feel them, I look, but I see nothing, it is like they are underneath my skin.
So tiered, so so tiered. My perfect memory is now not so perfect, However, I discovered this is not all bad because I can now rewatch TV programmes and films without knowing what is going to happen. I watched 50 first dates for the umpteenth time last weekend with my mum who had not seen it before, and I got the irony as I tried to figure out what was going to happen next.
And of course, I still get pain and gurgles from that old liver of mine. Sometimes, when I eat just right, I can hear my bile ducts and my lower stomach having a right ol natter too each other, probably moaning to each other about my poor diet and their own misfortune to end up being my organs.
Any way, I have not got a clue if it is PBC or not, I suppose the right thing to do is point it out to my Doctor and see what tests he thinks I should have. What tests are there?