I was diagnosed with PBC 7yrs ago, although I had had the symptoms for 8 yrs prior to diagnosis (I was told I had irritable bowel syndrome)! I have battled the itch for 6yrs now and I have finally had enough! I take urso, naltrexone, questran, rifampicin, antihistamines and clonazepam, I have lost my get-up-and-go and my sex drive because of all my different meds. My consultant told me I could try sertraline next for the itch but not even going to entertain him - I am going to see my GP tomorrow to demand a referral to the liver unit in Edinburgh - plasmapheresis is looking like it's going to be the only thing to help!
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