On the transplant list and scared, has anyo... - PBC Foundation

PBC Foundation

9,480 members8,355 posts

On the transplant list and scared, has anyone else been there too? X

Shellbear profile image
10 Replies
Written by
Shellbear profile image
Shellbear
To view profiles and participate in discussions please or .
10 Replies
Lisacj profile image
Lisacj

Hold on, good luck xx

I had a liver transplant 9 years ago and was only on the waiting list for 6 weeks. The wait was hard to bear but just remember that it will be worth it in the end. Good luck.

LindaRose profile image
LindaRose

I had a transplant 9 years ago, so have been through this, I support pre transplant patients at KIng's so if you would like some support do private message me and I am happy to support you through it...where do you live? Don't be scared you need all the positive mental attitude you can muster up!

busylady profile image
busylady

Hi Shellbear, I know this is a difficult time, I had my transplant in Dec 2012 ( approx 5 months ago). The waiting is hard, and I know the prospect is scary but believe me its worth it, I feel so much better post transplant than before.

You do feel that while you are just hanging around, waiting for that call. Your life is on hold,and you are in limbo. Try and stay positive, you are one step closer to a new you and a new life post transplant. I would suggest you try and carry on as "normal" for as long as you can. I waited 6 months for my transplant and I carried on working full time for the 3 months I was on the list, but then took sick leave.

My top tip would be make sure you keep yourself as well and as strong as you can pre transplant, it really does help with in your post recovery period.

I wish you the best of luck and a speedy transplant.

Angie

Karaliz profile image
Karaliz in reply tobusylady

Hi busylady,

I'm sure I speak for many other readers of your wonderful blog when I say how thrilled I am to hear of your transplant. Your blog is so inspiring and I looked forward to hearing how you fared. Congratulations to you and your family and all the best from Down Under for a long, healthy life.

Karaliz

busylady profile image
busylady in reply toKaraliz

Thanks very much, My husband and I kept blogging to keep family and friends informed of my progress post transplant. I have posted the links if you are interested.

Take care Karaliz and stay well

x

Karaliz profile image
Karaliz in reply tobusylady

Thanks so much Angie - I look forward to reading your story post transplant and thank you again for sharing your journey.

Karaliz

mojo62 profile image
mojo62 in reply tobusylady

I was also wondering how you were doing. So glad to hear things went well for you.

bink profile image
bink

Hi lisacj,

Glad to hear you are on the list . I start pre transplant testing at the Mayo in Jacksonville Fl on June 13th ~ i am both glad yet nervous and scared at the same time . where are you listed at and where will you have the transplant at ? wishing you the best of luck and sending prayers your way !

Axl888 profile image
Axl888

Good luck and best wishes. I am not at transplant stage yet but I have three friends who have been through the transplant process and are doing fine xxx

Not what you're looking for?

You may also like...

anyone out there been referred for transplant assessment twice ( or more?)

Hi to all my fellow PBC'ers, I have just got back from another endoscopy, where they have tied...
busylady profile image

Has anyone been through the liver transplant assessment and can let me know what it entails etc. Thanks

Would like to know what is really important in order to pass and also anyone who has had the...
MrG5 profile image

Anyone else been diagnosed with Autonomic dysfunction on top of PBC?

Anyone else been diagnosed with Autonomic dysfunction on top of PBC? I've had an awful weekend,...

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.