Joint pain and walking and rash

[friz42]

I have not been diagnosed with vasculitis but have new symptoms appearing.

I have a persistent rash on lower legs and hands. Could be steroids I know. Does this look vascular in nature please?

I have horrendous feet joint bone muscular pain just about all over. Worst wakes me many times and going upstairs is getting very difficult. Strength is zero. Hips pelvis hurt so much and ribs so painful. No meds touching it. Had fractures because so unstable on feet.

Regarding vasculitis can anyone else relate to this pain and mobility getting worse?

I have problems with reflux eyes burn severe weakness and some kind of possible lung disease. Weakly positive p anca mpo intermittent.

I have Sjogrens and hypothyroidism adrenal insufficiency spondylitis perforated bowel reason unknown.

Thank you

[AmyS1]

Call the vasculitis uk telephone helpline asap. Positive Anca and these symptoms should not be ignored!

[Chipper03]

Yes, I can relate to some of those symptoms, the dreadful pain which no meds touched, feeling terribly ill, mobility lessened and rashes everywhere. I now know this was the acute phase of vasculitis and once I had the treatment things improved. Contact helpline, as has been suggested, and your gp and consultant if you have one. Best of luck, hope things improve soon.

[eh66]

The joint pain was something I remember all too well plus I had blood blisters and eye issues, and bright orange urine due to the destruction of my blood vessels. I dodged a bullet, having only minor kidney damage, and great consultant team. I would phone your GP but also speak to the Vasculitis helpline.