Does anyone else with egpa feel like a ground shaking motor chugging somehow right beside the house when you go to bed at night?

[Cathywp2]

I know now that it’s not real but it sure feels like I’m living beside a rumbling freight train. It only happens at night. I think it is my ears but who knows because I also really feel that phantom train shaking the room. Must be an earthquake! Thoughts?

[maisie5]

Hi Cathy, I have had systemic vasculitis for 11 years. I had a similar feeling in my legs and feet on a regular basis for 6 or 7 years. It was never diagnosed but just stopped happening when I had a course of rituximab,

However, following a suspected stroke which turned out not to be a stroke ( I was paralysed down my left side for 8 hours) I was diagnosed with Functional Neurological Disorder by a consultant at Addy's who told me that the old vibrating/rattling feelings were real, just very few doctors understand what they are!

Find your self a consultant who understands FND

Let us know how you get on

[Cathywp2 in reply to maisie5]

Thank you. Now I’m going to google FND