AIH PBC and AI Pancreatitis

[Curedreamer]

Hello. I’m new here and this is my first post. I’m from Chile, I’m 42 yo and a math teacher (unemployed for the moment)

In February this year I was diagnosed with AIH and in May I had a nasty Vasculitis flare (which I didn’t know what it was yet!) and then doctors said I also had Autoimmune Pancreatitis and ANCA Vasculitis and most likely I didn’t have AIH but there was a chance they were all related so I started with cyclophosphamide infusions. Lungs and sinus got better but liver tests were getting worse so they decided to do a biopsy. Now I know I have not just ANCA Vasculitis but ALSO AI Pancreatitis AND AIH-PBC

Now I’m asking for advice... how can I get rid of the itching on hand and feet? Is there any advice on how to control the pain? What foods should I avoid? Is there anyone else with all of these autoimmune illnesses?

Thanks x

[jane1964]

Hello I have similar problems for me the liver problems started first with primary biliary cholangitis (pbc) and After a few years I started with the ANCA vasculitis which was diagnosed last year after a long delay.I am fortunate that my vasculitis has been brought under control with steroids and then azathioprine and for me this has also improved my liver tests too.I had problems with the itching hands and feet at the beginning but once on ursodeoxycholic acid for the pbc the itching improved somewhat although it still keeps me awake at times if it's bad for you I think your doctor might prescribe you something as I've read about this in the primary biliary cholangitis forum.It's worth joining the pbc foundation it's free and the website has lots of help.I still have pain although it is less than it was during the time before I was on treatment but still with me always I am prescribed some pain drugs but they only help a bit.I find heat also helps.I hope you get your conditions under control.It's pretty tough having both these , I find the fatigue very hard.

[Curedreamer in reply to jane1964]

Thank you very much!

[bumble05]

Yes. I have churg Strauss. Ask to be put on predesilone. I'm also going to try mycrophenolate as I can get my predesilone down lower than 10 mg without coughing and sinus probe after 6 years. But I have doubts.

[Curedreamer in reply to bumble05]

I started with prednisolone last year when they thought I had sarcoidosis but it was way too expensive and doctors changed to prednisone. Later they changed diagnosis. Thank you very much for your reply