Css,egpa: Hello , just come back on health... - Vasculitis UK

Vasculitis UK

7,941 members6,973 posts

Css,egpa

kujude profile image
2 Replies

Hello , just come back on health unlocked, would love to chat and catch up with anyone who has churg strauss , I was diagnosed about 6 years ago . I am currently on 7.5 mg pred and 150 mg azathioprine plus other meds .I struggle daily with pain , fatigue and weakness. Have my bloods tested monthly.Also have low cortisol due to steroids .

Written by
kujude profile image
kujude
To view profiles and participate in discussions please or .
Read more about...
2 Replies
sharoz profile image
sharoz

Can steroids make your muscles shaky

Merrytrious profile image
Merrytrious in reply tosharoz

When my legs go wobbly I know that I need to take another dose of steroids. I switched from Prednisolone to Hydrocortisone (HC) to reduce other effects.

Not what you're looking for?

You may also like...

EGPA nerve involvement

I have had what I have thought is 2 long bouts of Sciatica, hugely painful. I have just spoken to a...

EGPA Diagnosis today

Hi I'm a 24 M and have been diagnosed with EGPA today after 2 weeks in hospital. Started with...
s8lomon profile image

Doctor says egpa does not affect your brain

Ok so now I'm back to where I was a year ago. Today was my third visit to the rheumatologist and I...
Cathywp profile image

Is infusion therapy necessary to achieve remission in egpa

I am wondering about achieving remission. I do not think that I have ever actually been in...
Cathywp profile image

Benralizumab for EGPA patients

Vasculitis UK is appraising benralizumab. I would welcome quotes from EGPA patients...
zoe69 profile image
Administrator

Moderation team

See all
zoe69 profile image
zoe69Administrator
Allotmental profile image
AllotmentalAdministrator
JaneLE profile image
JaneLEAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.