Css,egpa: Hello , just come back on health... - Vasculitis UK

Vasculitis UK

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Css,egpa

kujude profile image
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Hello , just come back on health unlocked, would love to chat and catch up with anyone who has churg strauss , I was diagnosed about 6 years ago . I am currently on 7.5 mg pred and 150 mg azathioprine plus other meds .I struggle daily with pain , fatigue and weakness. Have my bloods tested monthly.Also have low cortisol due to steroids .

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kujude
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sharoz profile image
sharoz

Can steroids make your muscles shaky

Merrytrious profile image
Merrytrious in reply to sharoz

When my legs go wobbly I know that I need to take another dose of steroids. I switched from Prednisolone to Hydrocortisone (HC) to reduce other effects.

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