I am wondering if anyone else has been in a siniliar situation to my dad and any advice would be greatly appreciated.
In February 2018, my dad became ill. He is 59 and generally a fit man and always looked after himself. He hadn’t been to the doctors in over 20 years and as far as I can remember I’ve never known him to have a day off work.
He went to the doctors 3 times in a week after having flu like symptoms, they told him he had a chest infection and a UTI. He went back to the doctors and was told to go a&e because of an increased heart rate (180 bpm) he was then told he pneumonia and atrial fibrillation . He spent 2 weeks in hospital and was eventually discharged. Had a CT SCAN of his lungs as they found nodules, got the results back and they were fine. We thought all this was scary as the cancer word was mentioned but a sigh of relief and we thought he would start to feel better, how wrong was we. When Home he never got any better, had pain in his legs which the doctors kept saying it was a side effect of his heart medication. He struggled to walk far sometimes and became out of breath. Had doctors appointments and bloods taken (still waiting to hear back for these funnily enough).
Roll on to good Friday, he was having chest pains so was admitted to hospital once again, they said he had a heart attack. He was also told he had another UTI again too. He was sent for a MRI Scan and had several specialists see him. He then came out with a rash, basically blood blisters on his arm and legs. Last week we was told he had Vasculitis Granulomatosis with polyangiitis. He was transferred to another hospital on Wednesday for a kidney biopsy. Steriods were started and a form of chemotherapy. However, he has deteriorated over the weekend. There is some further damage to his heart (due to more chest pains) and he’s got really low blood pressure. He is now seeing double, his voice is quiet and he can’t hear. He’s on oxygen now too. He was transferred to critical care yesterday.
I have read about Vasculitis as prior to my dad being diagnosed it was something I’ve never heard of. It seems my dad has a lot of different problems, they can’t do the biopsy now due to his heart medication and his general condition. They are going to send him for a brain scan.
Is there anyone out there who has had all the symptoms my dad has? The renal doctor told us yesterday it is the complications with his heart that it is making him so ‘complex’ as they say, his kidneys aren’t functioning well and he can’t even feel his feet and has got pins and needles in his hands. It was so hard, seeing my active dad, not being able to stand without assistance. He’s having joint pain and it looks like the muscles are disappearing from his body. It’s just more test after test and they are still deciding on treatment. I’ve seen my dad deteriorate rapidly over the last few days and I worry how much more damage a couple more days can do.