Hi all, just wanted to post about my recent illness and final diagnosis and to say hi really.
I’ve been suffering with sinus issues since Early last year, face pain, nose bleeds and discharge, hearing loss, headaches... the usual! Finally after what seems like forever I’ve been diagnosed with GPA and have started my steroid treatment today and am waiting for my ongoing treatment plan which will be confirmed on Friday. I’m feeling up and down about it all. Happy and positive one minute then upset and worried the next. Just wandering if anyone has any advice for me going forward really. What have people done about work and daily life? I have three young kids and I’m exhausted but I have to keep going for them. I have a stressful job and feel I have to keep going with that too. I don’t know where I need to be or what I’m supposed to do.
I’m a keen cyclist so am trying to keep riding, partly to keep fit and partly to have some me time in the quiet of the woods.
I guess I just want to speak with people the same as me instead of the usual ‘I know how you feel, I get bad sinus problems’ just want to tell people to p**s off! (Sorry for that!) but it’s quite annoying!
Anyway, any thoughts or advice would be welcome and appreciated..