the beginning: i had a seizure at work and... - Vasculitis UK

Vasculitis UK

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the beginning

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i had a seizure at work and woke up in an ambulance. it took 18 months and had a brain lesion removed . several specialist later and my rheumatologist finally figured it out, i also had the rapid weight loss 40 lbs. in like 6 months without trying to, steroids put it back on and have been trying to take it back off but it doesn't seem to be working. i also quit smoking about a year ago. i have the brain fog issues and fatigue. before i had my brain surgery. one day i had 9 seizures and had a bout of a panic attack that ive never had. i am currently on 2 seizure medications along with a handful of other medications, no prednisone. i have regular MRI tests done and see my neurologist, rheumatolgist and family Dr.. on regular basis. my rheumatolgist has been on top of my treatment. i also have osteoporosis. i've joined a gym and have been going trying to build up my stamina. feel exhausted and foggy headed most of the time. reading some of your stories has helped a lot to see other people with the same symptoms makes me feel not so alone. None of my family or friends seem to understand when i try to explain to them how i feel. i get real anxious when it comes to handling my business affairs, i like to have someone with me so i know i'm understanding what im being told. thanks for a place to share and learn as well. bgfan

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bgfan
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AndrewT profile image
AndrewT

Dear bgfan,

Apparently you are now 'following' me- welcome.

I will 'talk' to you more later.

Kindest Wishes

AndrewT

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