Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,779 members • 6,752 posts

All posts for January 2018

Referring Committee?

Hi I spoke today to my doctor about positive results for ANCA and C reactive protein tests and the fact the blood report suggests I should be referred for...

Hi I spoke today to my doctor about positive results for ANCA and C reactive pr...

Lavender-Flowers

•6 years ago

EMA Accepts Conditional Application for ANCA Treatment Avacopan

I suffer from MPA and am currently on my third year of 6 monthly infusions of Rituximab + Prednisolone after an unsuccessful year of Cyclophosphamide. This...

I suffer from MPA and am currently on my third year of 6 monthly infusions of Ri...

•6 years ago

Early retirement because of Cerebral Vasculitis

Hi, my husband's suffers from Cerebral Vasculitis and is under cyclo infusion. He had a relapsed at work and fainted ! Now they will not allow him back at work...

Hi, my husband's suffers from Cerebral Vasculitis and is under cyclo infusion. H...

•6 years ago

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Concern

I have ANCA Vasculitis but in remission at the moment and having Rituximab every 6 months.I also have Stage3/4 CKD but this last day am now passing blood and...

I have ANCA Vasculitis but in remission at the moment and having Rituximab every...

•6 years ago

Symptoms of GPA or MPA

Hi! I'm new to this forum so hoping someone might be able to help me. My mum died 2 years ago from complications relating to MPA (microscopic polyangiitis)....

Hi! I'm new to this forum so hoping someone might be able to help me. My mum die...

•6 years ago

Osteopoenia/osteoporosis

Just received my bones density scan results which shows osteopoenia. GP wants to follow up to discuss treatment options and try to coordinate with my rheumy....

Just received my bones density scan results which shows osteopoenia. GP wants to...

•6 years ago

Nearest Vasculitis specialist

Just wondering if anyone can recommend a Vasculitis specialist centre or doctor in the South East? I live in Bexhill. I am being treated at my local hospital...

Just wondering if anyone can recommend a Vasculitis specialist centre or doctor ...

•6 years ago

High eosonophills

I recently discovered that I had high eosophilla. My pulmonary doctor. Said that was the reason that my asthma was so bad. Waiting for insurance to approve...

I recently discovered that I had high eosophilla. My pulmonary doctor. Said that...

•6 years ago

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Elevated Eosinophils

Hi all, I wanted to join this group and ask a question about elevated eosinophils. I have hypothyroid and PBC ( autoimmune liver disease), but both are well...

Hi all, I wanted to join this group and ask a question about elevated eosinophil...

•6 years ago

I need answer.Please.

Did you have rise of anca without relaps?

Did you have rise of anca without relaps?

•6 years ago

Rigor after 2 x Rituximab infusions

I thought that the drug had been a miraculous cure as I’d not had an episode since the first treatment on 1st December then again on 15th December I went to...

I thought that the drug had been a miraculous cure as I’d not had an episode sin...

•6 years ago

Flu jab

Hello all I could be mentioning something totally not relevant here but it was something someone said to me this week. I know there are many different types of...

Hello all I could be mentioning something totally not relevant here but it was s...

•6 years ago

P anca positive

What is yours experiance with titre of antybody and relaps?

What is yours experiance with titre of antybody and relaps?

•6 years ago

Problematic verruca

Anyone had difficulty in getting rid of a verruca when on immuno suppressants? I am taking Humira for my P and also azathioprine for HSP (Vasculitis) and am...

Anyone had difficulty in getting rid of a verruca when on immuno suppressants? ...

•6 years ago

Can anyone recommend a private consultant to speed up diagnosis?

Sorry if this has been covered in other posts but I'm new here and struggling a bit to navigate the page! Just wondered if anyone knew of any private...

Sorry if this has been covered in other posts but I'm new here and struggling a ...

•6 years ago

First Rituximab Infusion

Happy new year to everyone! On the 28th December, I had my first Rituximab infusion. My consultant began by telling me my lumbar puncture came back clear and...

Happy new year to everyone! On the 28th December, I had my first Rituximab infus...

•6 years ago

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