Concern: I have ANCA Vasculitis but in... - Vasculitis UK

Vasculitis UK

7,758 members6,736 posts

Concern

Keithtim10 profile image
6 Replies

I have ANCA Vasculitis but in remission at the moment and having Rituximab every 6 months.I also have Stage3/4 CKD but this last day am now passing blood and wondered if anybody has experienced the same.

Written by
Keithtim10 profile image
Keithtim10
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Jann profile image
Jann

I also have stage 3/4 CKD and although they test for blood in the urine when I go to see my consultant it is normally negligible.

If blood is visible then I think you need to get to get to your GP or consultant if only to confirm there are no major issues.

Take care.

in reply to Jann

Great advice from Jann, visible Haematuria ( blood in the urine ) needs investigated ASAP.

Keithtim10 profile image
Keithtim10 in reply to Jann

Thanks Jan i am actually going to see my consultant tomorrow and i rung her today and she said they would sort it then but if any clots appear tonight i must go to Aand E.Thanks

Jann profile image
Jann in reply to Keithtim10

I am pleased you will be seen quickly. Good luck.

gilders profile image
gilders

I also have ANCA vasculitis. My kidney function is 14%, I'm having a transplant (my dad has been passed to donate) within the next few weeks and my urine has high levels of blood when tested.

BUT the blood is not visible. Therefore if you can actually see blood in your urine, it needs to be checked asap!

Keithtim10 profile image
Keithtim10

Many thanks everybody for your help and comments they are very helpful.To update you i have been to see my consultant today and he has referred me to Urology for examination which will happen quickly so this is good and hopefully get sorted.

Once again guys thanks.

You may also like...

Virus Concerns

I have MPA and take MMF daily and have done now for 5 years, currently have reduced my dosage down...

Following Rituximab, is this expected or is there cause for concern

backwards and it has been 6 weeks since my first infusion Has anyone else experienced this?

Has anyone had difficulty getting help, because the doctor is concerned about putting you on medication due to age and side effects?

appears fearful that if I have severe side effects he will get sued! So now I have to wait yet...

Diagnosis of Vasculitis

I have read on this site that some people have waited years for a diagnosis of vasculitis, therefore

Churg Strauss/Radiotherapy

Has anyone had the experience of having churg Strauss and having to have radiotherapy for cancer. Or