Hi! I'm new to this forum so hoping someone might be able to help me. My mum died 2 years ago from complications relating to MPA (microscopic polyangiitis). She complained for years of numbness in feet and eventually was diagnosed after developing pulmonary fibrosis. For the last 3 years I've been experiencing a number of symptoms which initially manifest as peripheral neuropathy. Other symptoms include: head tightness, tinnitus, dull hearing sensation yet irritability and over sensitivity to many noises, headaches, sinus type pain, chronic back pain. I've seen a neurologist and am currently having tests for B12 deficiency with a haematologist - all test have come back negative. I know the AAVs are rare conditions but as my mum had MPA I wondered if anyone who has GPA (Wegeners) or MPA has experienced similar symptoms to mine.
Thanks - any insights would be much appreciated.