I was diagnosed with Wegener's in 2002 aged 54. After a year of heavy medication and not feeling too good I got back to something I could cope with. I have kidney involvement and at one stage they were preparing me for dialysis. However, my last 3 blood readings have been 26 eGFR, which has been a miraculous recovery. My consultant does not know how this has happened. For some time now I have been on azathioprine and this has been a contributory factor to many squamous cell carcinomas which have been excised clinically. At this time I have had 7 operations and awaiting at least one more. I was not made fully aware of the side effects of azathioprine and apart from always feeling tired ,this is my major concern now. I have spoken to my consultant but she says I really have no alternative but to continue with azathioprine. If anyone has had or his having a similar experience and can offer some advice , I would love to hear from you.
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