Hi to all,
I am still into the process of having a definitive diagnosis so, right now, I am told it is ANCA positive generalised small cell vasculitis. I bet rigors and my temperature will rise to 104 but I feel freezing cold and am even scared to expose even a hand, from u dear the bed covers.
After these rigors, I've often coughed up dark blood but it seems to clear after around 3 days but I feel totally beaten up for at least a week to 10 days after.
I was recently screened for H- Pylori and it was positive so I was put on metronidazole and amoxycyllin plus omeprazole. I finished this on Monday but I had one of my rigors yesterday and was apparently talking to a non existent person or people and was so very ill all of yesterday and had a really awful headache all day. I was coughing up what I believe to be stomach juices but had got into my lungs. My chest was so painful that I could not take a deep breath and I somehow managed to clear my lungs at around 02:00.
Has anyone else had this type of thing and, if so, can you give any advice please. I am seeing a lot of medical people within the next 10 days but I couldn't make my appointment to have a nerve block into my lower back and I am so upset and the leg pain is excruciating. I really do feel like I am about to die when I get these rigors but now it seems my lungs really are taking a big hit.
I won't lie and pretend I am being strong, I feel extremely low and depressed and I really wouldn't mind if I passed. This disease and the meds make my quality of life so very poor.
Thanks in advance