I have been unable to post due to being very poorly since before Christmas. I had a mastectomy before Christmas and was told everything was o.k. But January this year the pain in my chest and back was getting so bad I thought the operation had upset the vasculitis and thought it would settled. My GP also thought it would settle,however to cut a long story short my GP. eventually said I will contact our nearest hospice for them to manage the pain . Well after having pneumonia and a hospital inpatient during my stay I was given blood tests Scans And MRI scan ( full body) the result came back with cancer of the spine. This came as a tremendous shock because all the focus was on the vasculitis also I had been reassured all was well with thoughts around breast cancer. Now I am having to sort out the best treatment for me I have an appointment to see a consultant who specialises in bone cancer.
I still get confused if the pain is vasculitis or cancer.
I have been in the hospice for seven weeks and they have been marvellous. I am at home with support from the hospice, I can't grumble.
I have had problems trying to reset my password why that also went off the scene as well I. Do not know but at last I am back.
I would like to send all good wishes to you all