After the usual delay to get a diagnosis my 51yo husband has been diagnosed with this horrible illness. Initially he received almost no treatment for 2 months until we managed to get a referral to the wonderful team at Addenbrookes. has received platelet washing, heavy doses of steroids and is awaiting rituximab (today probably). He has been under their care for only a week and although he is less ill as such he has now lost complete use of one hand and most of the use of the other and can no longer stand or walk due to numbness in his feet. No one has said he won't get better - but no one has said how long this might take. With 3 small children and a farm to run can anyone share their experiences of what might happen next. At end of tether and can't stop crying.
Last edited by jmtjat