Route map for vasculitis: I have just received... - Vasculitis UK

Vasculitis UK

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Route map for vasculitis

Bailey24 profile image
11 Replies

I have just received my copy of The RouteMap for Vasculitus - I have to say I am very impressed with the amount of information & coverage in it - it will be a very useful source of referral & information for me as a parent of a child with Wegeners Granulomatosis & I would certainly recommend it to anybody dealing with Vasculitis.

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Bailey24 profile image
Bailey24
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11 Replies
PatriciaAnn profile image
PatriciaAnn

Thank you Bailey 24. Your comments are very much appreciated.

PatriciaAnn (Editor of the RouteMap)

Poppymichael7 profile image
Poppymichael7

I am waiting for results of an ANCA test to see if I have Vasculitis and at my wits end till results come through. My legs are in such a mess with all these big blood splurges. They are black when they come up and some of them full of blood. They take quite a while to change colour and weeks before they fade away. I just feel I'm getting too old to cope with all these illnesses that have come out of the closet at me this year. This is the fourth one to join my outstanding diseases. I'm so fed up. Please excuse my rant but that's how I feel this morning. Could go on and on but best not, anyway folks thanks for listening xxxx

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply toPoppymichael7

Maybe we can help poppymichael7 ? I have forwarded your comment to John

Best wishes

Susan

John_Mills profile image
John_MillsVolunteer in reply toPoppymichael7

Hi, if you have particular problems please send me a message telling all about it. I don't like too much being on the open page, so a private message is best. We all go through a difficult time when the illness strikes, but it does get better. Probably what seems to be several illnesses is just the dirrerent manifestations of the same disease.

John

Suzym2u profile image
Suzym2uModeratorVasculitis UK

With out Patricia's hard work in collecting information and producing the Route Map, literally hundreds of hard copies of the Route Map would never have been posted to Hospitals, GP's and specialist nurses all over the UK.

Vasculitis UK are also very grateful to John Mills and Genetic Alliance UK for giving VUK the opportunity to produce the Route Map for Vasculitis, also all the doctors who have a special interest in Vasculitis who have contributed to the Route Map. I believe there will be another updated version of the RM available in the next few weeks. :-)

DBH1969 profile image
DBH1969

Sounds interesing how do get the route map? :)

John_Mills profile image
John_MillsVolunteer in reply toDBH1969

You can read the Route Map on line. vasculitis.org.uk/about/rou... Or order a hard copy from the shop vasculitis.org.uk/shop

Best wishes

John

nannysaurus profile image
nannysaurus

I would be interested in reading this. Can I get a copy or are they for gp hospital clinics etc?

DBH1969 profile image
DBH1969

Thank u :)

DBH1969 profile image
DBH1969

I had ben reading the route to map I agree very useful information especially in my area of WG. :-)

Davidhindmarch profile image
Davidhindmarch

My step daughter has just been diagnosed with a form of vasculitis which hospital/ specialist would either yourself or subscribers recommend ? Thanks .

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