I have CSS (diagnosed in 2008). I also have, heart failure, asthma and Bronchiectasis (progressive lung damage); all due to the CSS. You can imagine the amount of meds I'm on.
I tried to claim for an exemption card two weeks ago but have just received a letter to say "NO" because I don't have one of the conditions that are on their list. There are ten conditions.
I know this topic has been discussed before on here and people with CSS HAVE obtained an exemption card (type in exemption card into this sites search box to see posts) but I just don't know what else to try next because I'm not giving up!
Surely, if one person with CSS/ Vasculitis gets an exemption card, we ALL should get one?