Having a diagnosis of WG I was on Prednisolone, 40 mgs a day, from early 2011 with gradual tapering to 5 mgs a day by Feb 2012. I have remained at that level since and the team at Addenbrookes would now like to take me off steroids altogether. However this is not possible as, following a Synachen blood test, it was shown that my body has lost the ability to make its own steroids.
I am now referred to a local endicrinologist to see whether I would benefit from hydrocortisone instead of the Prednisolone. The apt is on the 11 Feb.
It would be very helpful to know whether anyone else has had the same difficulties coming off Prednisolone and, if so, what was your care team able to do about it?