Newcastle Upon Tyne Area: Would anyone know of... - Vasculitis UK

Vasculitis UK

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Newcastle Upon Tyne Area

prudence profile image
10 Replies

Would anyone know of any support groups in the Newcastle area ?

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prudence profile image
prudence
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10 Replies
PatriciaAnn profile image
PatriciaAnn

Hi Prudence

Susan and I looked into this a little while ago, and checked the number of members in that area. If I remember correctly the numbers were very spread out in that north east part of the country, and we were giving some thought as to exactly where might be the best location. Then other matters took up our time and we were unable to take it any further at that time. It is something we will look at again. Meanwhile the nearest one to you, at the moment, would be the Yorkshire (North) in early October, but that's near Leeds/Bradford so maybe too far for you to travel.

PatriciaAnn

Hi Prudence

As Pat has eluded the nature of our northern regions tends to spread us out rather sparsely but I live just north of Penrith in Cumbria so am only about 75 miles from Newcastle. Whilst we don't have enough participants to hold a regular group I'm the NW/Cumbrian contact and happy to meet up informally and help in any way I can. Please feel free to contact me privately here.

Healthy wishes.

Martin

prudence profile image
prudence in reply to

Thanks Martin

mandijt profile image
mandijt

Hi Prudence

I live in the north east (billingham) and i'm in regular contact with a lady on here from Darlington - we are going to meet up eventually! But we do "speak" almost daily on facebook and in the various groups that are on there. You can contact me anytime you like - even if its just for a moan......lol

regards

mandi

prudence profile image
prudence in reply tomandijt

Thanks mandi good to hear from you I'm also on the facebook site . Get my second treatment of cyclophosphamide Friday then 4 more to go hope it dampens it all down .would love to keep in touch . I live in Sunniside.

Lyndalou profile image
Lyndalou in reply toprudence

Hi Prudence, I live in Murton, County Durham, so i am not that far from you too. Feel free to get in touch

Lynda x

johnyenglish profile image
johnyenglish

Hi Prudence, I live about 6 miles from you, I've sent you a PM with my details if you would like to get in touch.

John

anngie profile image
anngie

Hi, Prudence, I live in Stanley Durham... so not far from yourself. So if you need to talk or would like to meet up, feel free to get in touch.

prudence profile image
prudence

Hi Anngie pleased to hear from you , I was thinking I was the only one up here with this disease but every week some other kind person gets in touch, is it Wg that you have ?. It's 4years since I was first ill but now have a flare up.

anngie profile image
anngie in reply toprudence

HI prudence, ive got urticarial vasculitus. I dont seem to be getting it under control. Im on Fexofenidene 3 times a day.. zantac and a drug called dapsone which has had no effect. Still im back to the hospital on the 15th aug. Try something else.!! Which type are you...? x

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