It is Rare Disease Day on February 29th 2012 One of the main objectives of the events is to draw media coverage to rare diseases.

[John_Mills]

One of the main objectives of the events is to draw media coverage, as well as to raise awareness of rare diseases and their impact on patients’ lives amongst the general public and decision-makers.

Follow the links below to get started Many people are raising awareness of Vasculitis.. Coffee mornings, swishing parties, Body Shop parties, walking, running, swimming...Anything that will raise awareness. We have wristbands postits, pens, balloons, t shirts and hats to sell too!

rarediseaseday.org/country/...

rarediseaseday.org/article/...

[bakermichelle1982]

I would really like to start something up here in Newfoundland. A cousin of mine who also has WG has mentioned interest in it to me a few times. I think its something I really want to pursue. Where do I go from here??

Cheers!

Michelle

[John_Mills Volunteer]

Hi Michelle I have sent you our email address by private message. John says he can advise you how to get started and he maybe able to help in a practical way too.

take care Susan x

[bakermichelle1982 in reply to John_Mills]

Thank you so much