I have Cerebral Vasculitis, is there a suppo... - Vasculitis UK
I have Cerebral Vasculitis, is there a support group in the South England, I see there is one in the SouthWest but this is too far away
![milliewin profile image](https://images.hu-production.be/avatars/d7757b4c8d4fef99be6c0308b01a8895_small@2x_100x100.jpg)
![milliewin profile image](https://images.hu-production.be/avatars/d7757b4c8d4fef99be6c0308b01a8895_small@2x_100x100.jpg)
![John_Mills profile image](https://images.hu-production.be/avatars/39bb4a78bf2cda0e0eaa37033885c8d3_small@2x_100x100.jpg)
Where abouts in the south Milliewin... There is one in Oxford, Cambridge, Surrey and Dartford London.
![John_Mills profile image](https://images.hu-production.be/avatars/39bb4a78bf2cda0e0eaa37033885c8d3_small@2x_100x100.jpg)
Also one in West Sussex
![John_Mills profile image](https://images.hu-production.be/avatars/39bb4a78bf2cda0e0eaa37033885c8d3_small@2x_100x100.jpg)
johnbee4@googlemail West Sussex
paul.m.bingham@btinternet.com Surrey
oxonvsghotmail.com Oxford
jenny.cambsvsg@hotmail.com
Dartford is a new group..will look for contact details
Hi just seen the Oxford details, thanks
![John_Mills profile image](https://images.hu-production.be/avatars/39bb4a78bf2cda0e0eaa37033885c8d3_small@2x_100x100.jpg)
Great! it is this Sunday
Really, I will see if I can go and get there? What happens in the group meetings?
![John_Mills profile image](https://images.hu-production.be/avatars/39bb4a78bf2cda0e0eaa37033885c8d3_small@2x_100x100.jpg)
Talks by Dr Jo Robson and Prof Raashid Luqmani, followed by a buffett lunch.
E-mail me on oxonvsg@hotmail.com for more details
Unfortunately I couldn't get to the Oxford seminar but thats a good point, is there any info from the seminar and yes when is the next meeting? Giffen good to know you live fairly close, I live near Salisbury?
Hi I have Cerebral Vasculitis, I am the only person I know of who has this illness in Lincolnshire. I would love to be able to discuss how my illness effects me and how it effects you.
Hi JRAN I also have cerebral vasculitis. I only found this site recently and have found it very useful. If I can answer any questions you have I would be happy to share my experience. How long have you had cerebral vasculitis?
Hi JRAN, good to hear from you, I havnt been on this site for a while but yes its great and very useful? I was diagnosed with Cerebral Vasculitis in 2008, how about you? I was mis-diagnosed initially, how about you, what were4 your in initial symptoms and how were you diagnosed?