I have Cerebral Vasculitis, is there a support group in the South England, I see there is one in the SouthWest but this is too far away

[milliewin]

[John_Mills Volunteer]

Where abouts in the south Milliewin... There is one in Oxford, Cambridge, Surrey and Dartford London.

[milliewin in reply to John_Mills]

Hi thanks for that, I am near Salisbury so Oxford is about the closest? Do you have any details, as I am new to this site?

[giffen in reply to milliewin]

hi have you been to oxford yet, do you know when the next meeting is, do you know how we get the up date on the last meeting, i live near Winchester i am new to this as well giffen

[John_Mills Volunteer]

Also one in West Sussex

[John_Mills Volunteer]

johnbee4@googlemail West Sussex

[e-mail] Surrey

oxonvsghotmail.com Oxford

[e-mail]

Dartford is a new group..will look for contact details

[milliewin]

Hi just seen the Oxford details, thanks

[John_Mills Volunteer]

Great! it is this Sunday

[milliewin]

Really, I will see if I can go and get there? What happens in the group meetings?

[John_Mills Volunteer]

Talks by Dr Jo Robson and Prof Raashid Luqmani, followed by a buffett lunch.

E-mail me on [e-mail] for more details

[milliewin]

Unfortunately I couldn't get to the Oxford seminar but thats a good point, is there any info from the seminar and yes when is the next meeting? Giffen good to know you live fairly close, I live near Salisbury?

[JRAN]

Hi I have Cerebral Vasculitis, I am the only person I know of who has this illness in Lincolnshire. I would love to be able to discuss how my illness effects me and how it effects you.

[Louzoejf29]

Hi JRAN I also have cerebral vasculitis. I only found this site recently and have found it very useful. If I can answer any questions you have I would be happy to share my experience. How long have you had cerebral vasculitis?

[milliewin]

Hi JRAN, good to hear from you, I havnt been on this site for a while but yes its great and very useful? I was diagnosed with Cerebral Vasculitis in 2008, how about you? I was mis-diagnosed initially, how about you, what were4 your in initial symptoms and how were you diagnosed?