GCA patients we need your views!

[zoe69]

Vasculitis UK is appraising a new medication for GCA. The medication is called Upadacitinib and it is used for other conditions already.

In the next few days we will ask you a few questions so we can represent your views.

Please comment here, send me a message or email Maxine Wright, our trustee who is working with me on this appraisal at [e-mail]

Question 1

What is it like to live with GCA? How does it affect your everyday life? How does it affect the people living/caring for you? Carers, please share your views too, they are equally valuable.

[DorsetLady]

You might get a lot more answers from the PMRGCAuk forum … have copied it there on your behalf -

[zoe69 Administrator Volunteer Vasculitis UK in reply to DorsetLady]

I am sure PMRGCAuk patient organisation is appraising too.

[DorsetLady in reply to zoe69]

Surely the more responses the better.

[zoe69 Administrator Volunteer Vasculitis UK in reply to DorsetLady]

Surely! Thank you for sharing it!

[DorsetLady in reply to zoe69]

You’re welcome. As an ex GCA patient, I’m always happy to see more investigations into treatment.