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Scleroderma & Raynaud's UK (SRUK)
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Pain fatigue uti

Hello everyone my best wishes to you all. Am feeling really low just fatigued all the time and swallowing worse tired of people telling me what lovely Christmas meals they are having. I can only have nutritional drinks. How do my friends in this group manage?Also have just sustained another compression fracture my fifth due to osteoporosis.Sorry for sounding so patheticxx

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Dearest Selsey


I’m sooo very very sorry that you are suffering so much sweetie.

I wish I had a healing wand πŸ₯’ that I could cure you with.

The best that I can do is send you hugs πŸ€—πŸ€—πŸ€— love πŸ’—πŸ’—πŸ’—

Kisses 😘 😘😘and healing prayers πŸ™πŸ™πŸ™. I’ve just said a special prayer for you dear.

Please take care and abundant blessings sweetie.

With love EJ


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Thank you so very much for your kind message means so much love selsey


You’re welcome sweetie πŸ₯°


Ah bless you, you are having a rubbish time. It's a shame there wasn't more help emotionally and mentally. At least you have this site you can share your feelings with. I wish you a speedy recovery. Take care


Hello Selsey - I'm sorry things are so bad for you. I do hope you manage to have some happy moments through the Christmas season. I so wish you could get some relief from your situation. We all think of you and send you good wishes. Love and hugs from me and everyone her.


You don’t sound pathetic at all so stop thinking that, obviously your going to feel low over Xmas when your friends and family are doing things you can’t, I’m feeling the same way, suppose it’s just something we have to adjust to as rubbish as that is and just be greatful that we’re here and able to enjoy Xmas with our families xx

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My friend ....,

I live on nutrition drink's ..... My favorite is Dark chocolate !!! πŸ’—πŸ’—πŸ’— 23 grams of protein πŸ˜‹πŸ€—πŸ€—πŸ€— ... Almost everyone likes chocolate ... (Should have bought stock on the market) ....

( Unless they are Alergic ) milk chocolate is just a tad TOO sweet ....

If the vanilla lacks enough vanilla taste..., LOL πŸ™ƒ I get the vanilla extract (the real one , not the pretend stuff) , an add a drop ....

Have You ever tried sleeping in a more up right position??? Or recliner ??? Too help with the chocking ???

I found a brick under the bed .., didn't quite help me .... (LOL 😹😹😹 unless I wanted to drop it on the crouch of the log sawing Buddy LOL 😹😹) ....

I currently too feel like I am in a living night mare !!! I developed some kinda freaking face, jaw pain .... From HELLO!!!!! ....

Your Not Alone ... Not at all ...


is merely the Biggest Humble Brag on the planet .... What is humble brag ??? There's more ***want-a-be's*** faking their way through it all .... Posting about how amazing Their live is ...., If a fly could speak ....,

Something else I decided to finally do too ..... Was give *** Real Weed *** a try ..... im Only into a week of trying ..., But I HAD TOO do Something !!!! About the freaking Pain!!!!! An I'm waiting for my Christmas gift **a Lovely MRI *** of my face and jaw ..... But I have learned about Marijuana!!!!! For the day time , you need the one called SATIVA.... It doesn't not make you sleepy .... It can make you creative !!!! LOL πŸ™ƒ .... The one called INDICA is the one for night time use .... It can make you sleepy !!! And I mean baby like sleep !!!!! TOO :) ..... If you can find a place where you can go and try it out !!! I highly recommend it!!!! (This is the place I learned about it , this site ... ) .... If you know of someone you can trust too send it to you ..., A friend that lives in a place where they can get it for you ..... just be mindful of ... Making sure it is some one you can really trust .....

Selsey πŸ€—πŸ€—πŸ€—πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜πŸ’—πŸ’—πŸ’—

huggs and kisses may our Grate Creator Bless YOU

You are never alone baby girl Never Ever


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