Cyclophosphamide

[Pennypetra]

Hi All

Just been told that I have to have a course of cyclophosphamide one day a month for 6 months. Has anyone else had this and what effects did you have.

Thanks keep smiling xx

[Geordie_Kate]

Hi, I started with a monthly dose of cyclo 9 years ago. I’ve never had any problems but some people can feel sick for a couple of days afterwards. I take two different types of anti sickness tablets to avoid this. My condition is now under control and treatment is now every 16 weeks. Good luck!

Katy

[Pennypetra in reply to Geordie_Kate]

Thanks for reply I am only having it for 6 months so fingers crossed

[Gumchops]

Hi there yes I had the same. It can be tuff and challenging. I lost a lot of weight. The bit I struggled with is the drinking of 3 litre of water after the session. I lost texture of my hair, didnt see my time of the months for a year. There also the nausea. It’s quite challenging on the body but it worth it. All the best

[Pennypetra in reply to Gumchops]

Thanks

[Glynis]

Hi I finished a course of the cyclophosamide in August.The only effect it had on me was I felt totally drained for a couple of days and a bit nauses but not after every infusion some months I had no effects at all I just took the anti sickness tablets which helped..This was my 3rd lot .First time 2006 the second time 20011/12..Feeling fine at the moment....Good luck

[Pennypetra]

Thanks

[annieoc53]

Hi Pennypetra, I had 6 months of cyclophosphamide 13 years ago which slowed down the lung fibrosis ☺ I had the same treatment two years ago and it wasn't too bad at all 😊 I felt a bit worn out for a couple of days after each infusion but the anti-sickness medication is really good so don't worry xxx It'll be worth it!

[Pennypetra]

Thanks for your reply xx

[Maryam_a]

Hi pennypetra

I’m currently undergoing a 6 month round of cyclo. I’ve had 4 rounds so far and it’s as everyone else has said. Nausea and fatigue mainly and I’ve also had some hair thinning but no major loss thankfully. Some rounds are better than others, just make sure you take it easy afterwards.

All the best x

[Pennypetra]

Thankyou I start mine just after Christmas so fingers crossed x