does anyone have experience of sodium... - Scleroderma & Ray...
does anyone have experience of sodium thiosulphate infusions for calcinosis ?
Written by
redtommy07
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
oooo this is interesting !
although I am sorry I cannot assist with an answer to your question ! but I am plagued with calcinosis especially the lump in my left knee which has caused me to be on antibiotics for the best part of the last 2 years.
I am on week 4 of a 6 week minocycline course for the calcinosis - not sure if there is any difference ! have you had minocycline ?
Have you had a sodium thiosulphate infusion ? what was it like ? who recommended this for you ? Guess youre living the dream as well !
Not what you're looking for?
You may also like...
Does anyone have diffuse scleroderma?
I've been diagnosed for a year now and have yet to find anyone who has the same version of the...
White patches...does anyone else have this?
Hi everyone, I have limited scleroderma and have started to develop patches of depigmentation on my...
Does anyone have itching and burning attacks?
I have episodes of itching and burning. My skin is really not that dry. I always try to keep my...
Does anyone know of a group for Sjogren's syndrome please?
I do not have schlerderma but do have Raynauds. Thanks for any help :)
Does anyone else have Raynaud's and photosensitivity too?
Hi ya,
Last year I was diagnosed with secondary Raynaud's phenomenon which I had never heard of, it...