does anyone have experience of sodium... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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does anyone have experience of sodium thiosulphate infusions for calcinosis ?

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oooo this is interesting !

although I am sorry I cannot assist with an answer to your question ! but I am plagued with calcinosis especially the lump in my left knee which has caused me to be on antibiotics for the best part of the last 2 years.

I am on week 4 of a 6 week minocycline course for the calcinosis - not sure if there is any difference ! have you had minocycline ?

Have you had a sodium thiosulphate infusion ? what was it like ? who recommended this for you ? Guess youre living the dream as well ! :)

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