raynauds and sceledroma (??) awarenes... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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raynauds and sceledroma (??) awareness month....

littlemissshy profile image
9 Replies

apparently there is a r.a.s.a.m.?? if so how have people raised awarness in the past? i think we should all do something....not sure what you think....or when it is for that matter haha :-)

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littlemissshy profile image
littlemissshy
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9 Replies
nanadx20 profile image
nanadx20

littlemissshy...its the month of june...some have walk/run relays..some are contacting different celebrities....anything can become a fund raiser...schools...friends...find someone that is good at organizing...the color is teal for scleroderma... :) ~debi~

SRUKadmin profile image
SRUKadminPartnerRSA

Hi there. Raynaud's Awareness Month is in February of each year and World Scleroderma Day is on 29 June 2013. It is an excellent opportunity to raise awareness of each condition through events in your local area.

littlemissshy profile image
littlemissshy

okay thanks!!

lizzy profile image
lizzy

I raise awareness via face book every June, I put loads of info out there, this year I am also holding a Charity craft fair on 29th june, world wide scleroderma day, I have done a couple of fund raisers in the past,

littlemissshy profile image
littlemissshy in reply to lizzy

ooh, cool. thanks :-)

AHM42 profile image
AHM42

I hope that your craft fair goes well on 29th June. Very many thanks for creating awareness and raising funds for the RSA

Anne

lizzy profile image
lizzy in reply to AHM42

thank you, I just think we have to do what we can, and hope others will help us

Springsong profile image
Springsong

I agree with Facebook as a good route. April was Sjogrens month & I had a different 'interesting note' about the disorder posted to my page each day throughout the month - (e.g. one day it would be one of the symptoms, the next it would be a rough percentage/ratio of sufferors, the next it would be a reminder men can get it too....) it really is a good way to highlight some simple facts & make people more aware.

littlemissshy profile image
littlemissshy in reply to Springsong

great idea....thanks!!

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