Pain management: How do you cope with... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,823 members5,405 posts

Pain management

acezero121 profile image
2 Replies

How do you cope with the pain, I'm taking Tramodol, ibuprofen and paracetamol for fun and I still can't sleep for long periods as the pain wakes me up all the time. I'm getting desperate for pain relief now, any suggestions please, just started on Nifedipine and got a vascular appointment in 3 days, if I haven't cut my fingers off by then. I have also read everywhere to keep warm, warming my fingers makes the pain worse from unbareable to excruciating.

Written by
acezero121 profile image
acezero121
To view profiles and participate in discussions please or .
Read more about...
2 Replies

Hi, I do attend a Pain Clinic - totally and utterly USELESS. Tried Nifedipine, made my pain worse, tried Codeine Phosphate prescribed by Pain Clinic - totally useless. Tried Ametriptiline (can't spell it) - again totally useless :( Back in August 2011, I reached the stage and asked a Vascular Consultant to amputate my feet or cut the nerves, in fact I've asked three times now for the amputation. So acezero, I know how you feel.

tinaparkii profile image
tinaparkii in reply to

Im the same but I have it in my arm/hand. I find nothing eases the pain and have also asked a few times about amputation but no 1 even replies to my plea. I am left handed and its my left hand/arm I suffer with. But I wouldn't refuse amputation tomorrow if they agreed to it.

You may also like...

BBC Wales programme - Pain Management

highlight the need for Health Authorities to look at pain management as a 'condition' in its own...

Swollen painful fingers, systemic sclerosis

impossible to curl and painful too. I can't lift or grip things unless they are lightweight (I'm...

Advice on medication to manage Raynaud's symptoms

years but it has recently become quite severe and i'm struggling to do everyday things like walk...

Amitriptyline - has anyone tried this for pain relief?

main problem is painful, sore fingers. I can pretty much tolerate and cope with the pain during the...

Painful digital ulcer scars

in a role which requires constant hand washing. Pain is expected when there is an active ulcer but I