hi my son is 15 and been diagosed with severe raynards can l claim dla for this as his has lots of problems with his hands and feet

[wendy68]

[Hidden]

Hi Wendy, I'm housebound with severe Raynaud's in my feet, hypersensitive i.e. walk on glass shards etc.. and I can feel every single bone in both my feet I applied for DLA and any day now should hear back. Since August 2011 I've repeatedly asked for my feet to be amputated or the nerves cut.

I would recommend you go to Citizens Advice and get them to fill in the form on your behalf. They write it in a way that DLA seems to listen more... If anything when filling in the form only ever focus on the hindrance, discomfort etc.. I also provided the DLA with photographs of cuts to my knee where I've fallen over so many times now also have scar tissue, other photographs showing bruises, again where I've fallen over trying to get out of a chair etc...

[carol-f53 in reply to Hidden]

Hi i would agree that you can apply for dla care and mobility for most conditions but only if they affect you in a bad way on a regular basis,get C.A.B to help fill out the forms,and dont give up if unsuccessful first time round,appeal if you have to...keep a very detailed daily diary for a few weeks to a month and then look over it first

[Hidden in reply to carol-f53]

Well, I cannot walk as I cannot use my feet and the DLA said crawling on my hands and knees is an acceptable way of getting about and therefore I do not have a mobility problem. I have so much scar tissue from the falls and torn trousers etc.... and my doctor and specialists, but DLA reckon it's fine to be crawling as a mode of mobility I cannot get into or out of a shower/bath without assistance but hey ho... when I can afford it I will buy a wheelchair. Been waiting 78 weeks now to see Occupational Therapist and social care

[carol-f53 in reply to Hidden]

did you appeal the dla decision ?did you get a full copy of all your claim details and the detailed refusal?do you have that crawling is acceptable in writing from them, it is important that you have the forms filled in in a way that shows how bad daily life is for you with the condition,writing it all in minute detail, its quite hard to do mentally as you naturally dont want to focus on the negative aspects of your life in general,by the time i had finished filling out my kids forms over the years i used to feel sooo down as you are constantly having to write the negative stuff and the dla department seem to rely wholeheartedly on you not doing the negative stuff very well and to simply refuse you benefit...i would re-apply if you have not already done so also you can ask to see the report your gp gave them,sometimes that can be an eye-opener as what is on your file at the surgery,isnt up to speed with how you are,communicating every detail so gp can fill in the dla form accurately to support your claim,if you look online you will find excercises that you can do that OT would do with you as just waiting 78 weeks is not on ,start them yourself and by the time you get to the OT you will save weeks of time by telling what works and what doesnt so they can skip to appropriate therapies,its a win all round,

[Brand1985]

Yes I'm on pip and La for my raynaurds condition as its really severe! Just take photos of everything u gave written on the forms for future reasons! And remember to tell it like the worst day possible that ur son experiences! The more medical letters or notes u have the better for ur case! Good luck.

Laura