I was diagnosed with scleroderma about 6 years ago and apart from one eposide of systemic inflamation approx 5 years ago I have been well. I have the limited form CREST wihich only seems to cause raynauds and some finger thickeneing. I have had annual lung function screening and Echocardiograms and thus far all has been normal. My last lung function test was fine but the Echo showed an estimated pulmonary pressure of 40 - 45 which I understand is quite high but normal bi ventricular function. From what I have read this level of pulmonary pressure would cause sypmtoms although the "interesting" thing is my exercise capacity is fine for example I can easily complete over 700 metres in the 6 minute walk test and I have no breathlessness or other symptons that I know of. I do have white coat hypertension syndrome and my GP now accepts that it is much better for me to monitor my BP at home when it is normal at 125/80. I find the echocardiogram ( or indeed most medical tests) stressful and I wonder if that can impact the estimated pulmonary pressure . My consultant is on the case and will be seeking additional opinions but at the moment no change in my meds or any further tests. Any opinions
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