haven't ever written on blogs etc... my mum has been diagnosed as having Scleroderma - the drs are checking the extent of it, but its going to be at least 4 months till she gets a full report (it has already been two months). I'm concerned that this is going to be a long wait. i'm noticing the thickening of skin on her face, the total exhaustion she is feeling and the fact that she is having at least 4 bowel movements a day. i don't know if this is normal, but what i am noticing is that our GP doesn't appear to be too concerned or have any expertise in the area. I have noted from blogs that it is really important to get the right medication and help asap, could anyone help with what specialist care and consultants are out there within the uk.