does anyone who suffers from Raynauds suffer from weak painful wrists , i was wondering if it could be connected

[skytiz]

i currently take nifedipine 3 times daily

[Hidden]

I also get weak and painful wrists, and recently my fingers on my right hand are doing the same thing as well as swelling. I am not sure if it is Raynauds, or something unconnected, I think I will go to the docs to have it checked out. Perhaps you should too. My mother suffered with this, and she had carpal tunnel. Best wishes Caz

[SandraMarie]

I'm very anti the Nifedipine as I heard it can have side-effects (that may have been for asthmatics though, can't remember it was so long ago now). It could be possible that you have CREST syndrome, but as I have, I wouldn't know which symptoms are separate to the Raynauds. Just ask your GP if it's connected.x

[zenabb]

Yes, I get painful wrists but not all the time, also painful finger joints but not all the time. It is CREST all right.

[zenabb]

Just to add, I have taken nifedipine and have done for very many years. It's a life saver but not for everything. I would not like to do without.

[Jessie122 in reply to zenabb]

Hello Zenabb, is the Nifedipine for Raynauds? I could not tolerate it it made me so sick. I was started on a low dose and after several months my GP took me off it as my body was not getting used to the Nifedipine. I now have Amlodipine which has a similar action to Nefedipine. However I am told that if you can tolerate Nifedipine it is better than Amlodipine. I still get attacks of Raynauds but so far only in my feet. The attacks can be severe. We have to keep them warm with socks and warmth around me. If any part of me gets cold then so do my feet and off goes a bad attack of Raynauds. I wrap my feet in a blanket with a heated pad and elevate them. Sometimes I just have to get into bed with several heated pads. I also get peripheral neuropathy in my feet and it drives me insane at night. I am on duloxetine for this but needed a high does which did not help my dry mouth. I have Balmosa Creme that I have used for chilbanes and used it one night when my feet were going mad with pain. It contains Capsaisin which comes from peppers and a compound similar to Asprin. It acts as a counter irritant and gives me some relief from the Neuropathy.It is also gentle. I have also read that you can get Capsaisin Gel so I am looking into that but it sounds very srong so will talk to my GP. osteoarthritis.about.com/od... Anything but thise awful pills. I do sympathise. Do you get any side affects from Nifedipine?

Best Wishes Jessie 122 (Jacqui is my real name)

[zenabb in reply to Jessie122]

Yes, I have Raynaud's and scleroderma limited. Fortunately I can stand quite a large dose of nifedipine 90 mg, but it makes me feel awful in the summer when I can't stand the heat so I reduce it to 30 mg. I was advised to do that by Dr Wiggley in the US but he told me to be careful and if the dose is too low to up it again.

[ceegee]

I have both painful wrists and the knuckle joints as well.. also the ankles. Spoke to my GP and he said it was all linked with the raynaud's and then sent me for a full fasting blood test again.

I also take Nifedipine 5mg 3x a day.. they are looking at upping the dose to 10mg 3x a day come winter. I have not suffered any side effects whatsoever in fact it has eased on the attacks but still am glad am on them

[Jeanette_Ish]

I too take Nifedipine for the same reasons although it has its side effects it cuts down on the pain of the wrists and joints in fingers & feet i suffer from carpal tunnel syndrome but still have problems with legs at night I too use heat pads on feet to help get some comfort and a peaceful nights sleep dread the winter also as it gets worse maybe like you i need this increased in winter, will metion it when i see the GP.

[skytiz]

thanks for the replies everyone ,,, i bought a wrist brace and it seems to be working ,,,, dreading the winter as i really cant stand the cold im on the highest dose of nifedipine already never had any side effects but my feet and fingers are still freezing all the time , i must say i look a bit silly wearing thick woolly socks and gloves in July thanks again

[emmajohn]

I've been wearing ski socks all summer as well as long pants. I also wear gloves in the morning when I'm out walking. I can stand beside one of my friends who is in a sundress and flipflops and I think we are in different climate zones. I am all for comfort and not having any Raynauds attacks. I have decided it is not my job to worry about what other people think, that is their business, not mine. Do what is best for you and quit worrying about what other people are thinking. Your health and comfort are most important. Those that know you will understand and want you to be as comfortable as possible. And to think, I was going to give all my old ski socks to one of the neighbor kids. I never thought I would love to wear them so much at this time of year. They have been my feet savers as I rarely have an attack of my feet now.

[tinaparkii]

I suffer wrist and arm pains. Constantly spray deep heat to try ease it a bit. Not started nifedipine yet as they said to have tests 1st to diagnose if I av primary or the worse case. IV had the microscope test to check my capillary loops on Tuesday. So hoping for results c if I can start on the tablets then.