Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2013

PSP and personality changes

This disease seems to heighten either the best or the worst in us? I have found it particularly hard to accept the very derogatory language my husband uses to...

This disease seems to heighten either the best or the worst in us? I have found...

SharonAB

•11 years ago

8 Replies

My wife won't eat

My wife won't eat although she is still able to and does quite rapidly consume fresh strawberries and cooked plums. But nothing else for three days, and since...

My wife won't eat although she is still able to and does quite rapidly consume f...

Hidden

•11 years ago

14 Replies

As like most of us, 99.9% of the time I am on my own caring for my husband and, again like most of it , find it very to move him when he is

in bed to make him comfortable. I know that received wisdom is DON'T but we live in the real world so I have to. I have asked about sliding sheets before...

in bed to make him comfortable. I know that received wisdom is DON'T but we li...

dorothy-thompson

•11 years ago

17 Replies

Want to take advantage of all our features? Just log in!

For U.S. patients/families-How do you get and keep home health services like PT, OT, ST and an Aide that Medicare will pay for?

carolinesimmons

•11 years ago

10 Replies

Confused !

We were told my husband has PSP in September 2010 after an MRI scan and various other tests. In April this year we had a routine appointment with the same...

We were told my husband has PSP in September 2010 after an MRI scan and various ...

NannaB

•11 years ago

27 Replies

London to Brighton or Bust?? Busted!!! :-(

Please take a minute to read this - ESPECIALLY IF YOU SPONSORED ME http://kathywblog.wordpress.com/2013/06/07/down-and-out-for-now/ My sister is...

Please take a minute to read this - ESPECIALLY IF YOU SPONSORED ME http:/...

Kathy

•11 years ago

9 Replies

My dizziness forces me to lie down for 23 out of 24 hours. Sitting up for a 15 minute meal is very hard. Does anyone else experience this?

LyndaEllis

•11 years ago

6 Replies

On A Lighter Note...

...I'm very pleased to report that since the night I left the hospital on 5-23, after experiencing a cluster of days I'd awake so physically ill in the morning...

...I'm very pleased to report that since the night I left the hospital on 5-23, ...

JudyJ

•11 years ago

6 Replies

Fearing the future

Haven't posted in a while but circumstances are changing and I am not sure what we should expect to happen next. Two weeks ago my mother in law finally agreed...

Haven't posted in a while but circumstances are changing and I am not sure what ...

Bubbles1

•11 years ago

2 Replies

Caregiver to PSP patient

Hi all :) I have been a caregiver to a PSP person for 4 years and just seeing if I can learn anything new or offer my advice on my experience as a caregiver...

Hi all :) I have been a caregiver to a PSP person for 4 years and just seeing i...

Kandi

•11 years ago

43 Replies

A Carer's Guilt

Can there really be a lighter side to these neurological diseases? While I am the full time carer for my wife with PSP, my brother is carer for his wife with...

Can there really be a lighter side to these neurological diseases? While I am t...

Hidden

•11 years ago

14 Replies

More space !!

At last, actually sorting out our Lounge. We live in a smallish bungalow with a 'smallish' lounge. i am a terrible hoarder, i can't bear to part with things,...

At last, actually sorting out our Lounge. We live in a smallish bungalow with a...

tisha1953

•11 years ago

14 Replies

Is the nuclear test SPECT crucial to support the diagnostic of PSP?

By following the medical diagnostic, my father’s illness is Parkinson-Plus. However, the SPECT test did not help to support it and it does not show any...

By following the medical diagnostic, my father’s illness is Parkinson-Plus. Howe...

mgarca

•11 years ago

23 Replies

Numbness anyone?

I've neglected the support I get from all of you lately. Between working full time, being a mom, trying to maintain a home and care for Bob, I'm pretty well...

I've neglected the support I get from all of you lately. Between working full ti...

laroux

•11 years ago

6 Replies

Any one using a in-home physical therapist for PSP patient?

I'm wondering if, when a PSP patient can't walk it is worth hiring a PT for them. Anyone do that? It would give limbs some movement. My wife can no longer...

I'm wondering if, when a PSP patient can't walk it is worth hiring a PT for them...

jimandsharynp

•11 years ago

17 Replies

My Sleep Study Results, Anesthesia Questions Answered.

I underwent a sleep study on 5-21-13 at the recommendation of my Neuro. This surprised me a bit because I never considered myself a poor sleeper. But, I was...

I underwent a sleep study on 5-21-13 at the recommendation of my Neuro. This sur...

JudyJ

•11 years ago

12 Replies

I hope I can figure anything to make my father awake he is sleeping nearly all the day!

My father was diagnosed with PSP a year ago and has been taking medication for parkinson disease two years before that, but I believe he is suffering of it...

My father was diagnosed with PSP a year ago and has been taking medication for p...

firo

•11 years ago

11 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(134)

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2013

PSP and personality changes

My wife won't eat

As like most of us, 99.9% of the time I am on my own caring for my husband and, again like most of it , find it very to move him when he is

For U.S. patients/families-How do you get and keep home health services like PT, OT, ST and an Aide that Medicare will pay for?

Confused !

London to Brighton or Bust?? Busted!!! :-(

My dizziness forces me to lie down for 23 out of 24 hours. Sitting up for a 15 minute meal is very hard. Does anyone else experience this?

On A Lighter Note...

Fearing the future

Caregiver to PSP patient

A Carer's Guilt

More space !!

Is the nuclear test SPECT crucial to support the diagnostic of PSP?

Numbness anyone?

Any one using a in-home physical therapist for PSP patient?

My Sleep Study Results, Anesthesia Questions Answered.

I hope I can figure anything to make my father awake he is sleeping nearly all the day!

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive