My dizziness forces me to lie down for 23 ... - PSP Association
My dizziness forces me to lie down for 23 out of 24 hours. Sitting up for a 15 minute meal is very hard. Does anyone else experience this?
– Perhaps worth a go...
John had extreme dizziness so I ask –What sort of lighting and colour and theme is your home painted? When we moved I did some changes that seemed to make huge differences to alleviating John's dizziness, anxieties and depression. Our last home was very modern, angular with lots of flat surfaces, chrome and black and solid greys, blue and white. It was always very neat and very much like a display home! There were lots of down lights and it was minimalist. It was look I created at the time and now appears to be the accepted modern suburban city look. However, when we moved I decided to do a little research on the impact of colour, lighting and furniture choices, fabrics, textures for people with neurological illnesses who describe their minds as being overly electrically charged & dizzy. I also had many years before completed a course that covered the detrimental effects of lighting on ships for American & Aust Defence personnel and how this carried across to life when back on land (linked in with social care when I worked alongside Aust Defence). Anyway, I was putting it all together and it all came about because doctors initially thought John's dizziness was probably some form of epilepsy. I did not want him to be on permanent drugs and suffer with what seemed like permanent feelings of dizzy or fuzzy. The result our new home has very little fluorescent lighting, lots of standard and table lamps and every colour and texture is in line with being as natural and giving as possible. Colours are terracotta, olive swamp green, creams and browns, lots of distressed wood furniture, mismatched chairs & sofas and doorframes returned to natural wood, cotton and natural linen fabrics, with lots of natural airflow and lots of natural light. I have also opted for worn brass rather than chrome fittings. Whilst this is something, I could do and try because we moved into a home that needed work done it realistically is not feasible for most people to attempt in such a big way. However is it possible for you try in one room - or is it possible for you to visit someone’s house, that has not been updated or altered for years and stay there for a little while or at least stay for a full day?. The changes I’ve made for our home are akin to how I recall a great aunts home to be and now it’s called ‘country shabby chic’.
Regards,
Alana – Western Australia
HOW VERY INTERESTING
My husband complained of dizziness and a feeling of being spaced out for the first 2years of his illness but that has now disappeared
What medication was your husband on @joey?
My mother-in-law was diagnosed with PSP in August 2012 and over the course of the past 8 months, she seems to be getting dizzy for longer portions of the day. She states that the only time she isn't dizzy is when she is in bed or sleeping. She is especially dizzy when trying to focus on things far away (TV, Movies, plays, etc.) and is better when she is engaging with something closer to her eyes (reading or on her iPad). If anyone has other suggestions for how to help with this, it would be greatly appreciated!
Joey - I'm happy to hear that the dizziness has gone away for your husband. Hopefully that will happen for my mother in law as well.
