My father was diagnosed with PSP a year ago and has been taking medication for parkinson disease two years before that, but I believe he is suffering of it many years ago as he started complaining of weakness in his legs and unable to walk for a long distance, then repeated falling with many many sutures all around his body and fracture of 4 ribs.
He was very active person, he loved walking and chatting with others and caring about his family, relatives, friends and others, so many people were depending on him and he was such a strong independent person! This seems to be a common character with many sufferers before having this disease.
Now he lost almost all his physical and mental activity, walks with great difficulty and gets tired after few steps, can't get up or set down alone, any time he goes of of the house he is so exhausted and stays in very bad condition for many days after, although he likes going out but unable to and it happened many times that he intended to go out but could't and felt asleep, so he now goes out rarely, he coughs so frequently with food or fluids and sometimes with nothing, all these symptoms I find it with others having PSP but the most strange and recent thing happening that he sleeps nearly the 24 hours 6 days a week and one day only he is awake for few hours. For the past two weeks he is sleeping till the afternoon, gets up and we try to feed him he goes to sleep on table and we take him back to bed.He only takes one incomplete meal and this meal became less than half the normal usual meal for him, and he takes minimal amount of fluids that scares me because I am afraid of dehydration. I think he is afraid of coughing everytime he drinks.
He used to feed him self till one month ago when he seemed not interested in eating or have no energy to feed him self but in the past two weeks he is refusing even to eat even if someone will feed him.
I just wish I can read his mind to know what is he thinking about or what he needs, if he just talks to express him self so that we can help, but this is very difficult to him. He only says few simple words a day like no or ok and that's all.
What I am describing was happening in episodes between which he was doing fine but the periods of fine attitude became smaller and smaller until it disappeared.
His neurologist tried many medications for brain stimulation and what so ever but all of no value.
By the way I heard about the coconut oil in this site and he was taking it regularly in the past two months but nothing has improved the disease it is just progressing in its way.