Haven't posted in a while but circumstances are changing and I am not sure what we should expect to happen next.
Two weeks ago my mother in law finally agreed to go into respite (after much wailing and hysterics!) this gave her hubby a chance to get a much needed break away while family visited her every day and she seemed very settled. When he returned he wasn't in the room 5 mins when she let have it with both barrels! full on crying fit and hysterics and all the emotional black mail to boot - poor man was so upset by it all! Incidentally she was never like this the week he was gone.
He wants to arrange another week in july but when he spoke to the care home they informed him they said that they won't take her again because she needs so much care and she requires specialised nursing care attached to a hospital (she needs to be spoon feed and moved by hoist from bed to wheel chair just to mention a few concerns)
He wants her to stay at home as much as possible with respite (despite the tears) to help him cope. He spoke to her doctor and he is suggesting the time has come for full time care, as much for his health as hers. There is also budgetary issues - the health trust says she is at the top level of care for home and its also cheaper to make her go into a home permanently - can they demand this happens?
Love as always
Bubbles x
Fearing the end is not far
experiences with care homes for residents who have PSP
Respite
The new normal
NHS Continued Care
