Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,074 members • 39,819 posts

All posts for June 2024

Great Presentation Today

Hope most of you caught Sarah Mackies talk today I thought the part on no NICE guidelines for PMR was good how we should work together with our GP’s. Look out...

Hope most of you caught Sarah Mackies talk today I thought the part on no NICE g...

Estellemac

•4 months ago

10 Replies

Feeling dispirited having had a flying start to meds, now regressing. Advice

Diagnosed and prescribed 20mgs of prednisolone 5 days ago. Woke up the next morning and a miracle had occurred. 95% improvement, could get out of bed, dress...

Diagnosed and prescribed 20mgs of prednisolone 5 days ago. Woke up the next morn...

Fatsiajaponica

•4 months ago

14 Replies

Blood test interpretation

Hallo everyone, I requested a blood test to cover a number of things - not sure this one covers everything or maybe there's more to come. I wonder if anyone...

Hallo everyone, I requested a blood test to cover a number of things - not sure...

Miserere

•4 months ago

9 Replies

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flare

Hi All I know that stress or a shock can trigger a flare, I am away in Spain at the moment completely chilled, last Friday I reduced from 15mg pred to 13 and...

Hi All I know that stress or a shock can trigger a flare, I am away in Spain at...

Mumdadlove

•4 months ago

6 Replies

Fingers Crossed

It’s a while since I posted and I am reluctant to say this out loud but I took my last pred two weeks ago and my inflamation markers have not risen. It has...

It’s a while since I posted and I am reluctant to say this out loud but I took m...

Pommygranny

•4 months ago

31 Replies

tests

I had test done at Gp and then took results to rheumatologist. Tbh he just told me to carry on with pred and then when my nhs appointment came about low and...

I had test done at Gp and then took results to rheumatologist. Tbh he just told ...

Uglow

•4 months ago

3 Replies

Wife Has Similar Symptoms

I have had PMR 5 yrs. I enjoy good days now @ 4mg Pred daily plus 20mg Methotrexate per week. 2 wks ago my wife began having the same intense bone and...

I have had PMR 5 yrs. I enjoy good days now @ 4mg Pred daily plus 20mg Methotrex...

DrRon

•4 months ago

17 Replies

Torn Rotator cuff

Just discovered I have a chronic rotator cuff tear in my left shoulder plus both shoulders arthritic .Having physio but so hard to do the exercises with the...

Just discovered I have a chronic rotator cuff tear in my left shoulder plus both...

daisylazy

•4 months ago

29 Replies

Newly diagnosed with PMR and thank you for all the info here

Hi everyone, I received a firm-ish diagnosis of PMR this morning, after a 1-week trial on prednisone that greatly reduced my symptoms. I’d say I’m about...

Hi everyone, I received a firm-ish diagnosis of PMR this morning, after a 1-we...

Bunchberry

•4 months ago

14 Replies

Appointment with Professor Dasgupta? Leg symptoms only.

A couple of weeks ago I mentioned that I was thinking of consulting Professor Dasgupta. I decided against it in the end (a long way away)and went to see Rod...

A couple of weeks ago I mentioned that I was thinking of consulting Professor Da...

FleetRose

•4 months ago

15 Replies

Rheumatologist recommended in uk

Hi, I'm considering going private to see a rheumatologist and wondered if anyone has done this and could recommend someone who has good knowledge of PMR please...

Hi, I'm considering going private to see a rheumatologist and wondered if anyone...

Bagginswoodman

•4 months ago

35 Replies

Advice on liver and kidney results on latest blood test

Diagnosed end of April, 2 days of intravenous pred @ 500, 1 day at intravenous @ 1mg and then onto 60, 50, 40, 35 - just started on 30 today. Bloods from 3rd...

Diagnosed end of April, 2 days of intravenous pred @ 500, 1 day at intravenous @...

Anne241262

•4 months ago

3 Replies

Gnat bites.

It's a trivial thing, but does anyone else find that ordinary little gnat bites blossom and grow, and take ages to go away AND STOP ITCHING! I'm suspecting...

It's a trivial thing, but does anyone else find that ordinary little gnat bites ...

Sharitone

•4 months ago

37 Replies

Update to Advice Please.

Many thanks to PMRpro, SnazzyD and DorsetLady for your response to my question earlier. Blood test done, and an appointment to see the Rheumatologist this...

Many thanks to PMRpro, SnazzyD and DorsetLady for your response to my question e...

pmrgcavictim

•4 months ago

2 Replies

GCA and strokes

Last Wednesday I had a telephone Drs appointment about my blood test results. In among I happened to mention I had had a feeling on my left side of both my leg...

Last Wednesday I had a telephone Drs appointment about my blood test results. In...

prunus

•4 months ago

13 Replies

PACE & KISS Mantras

My new Daily Mantras for PACE P Prepare to A Accept & C Carefully C Control E Energy levels And KISS? Keep It Simples (Sister/Stupid😅)...

My new Daily Mantras for PACE P Prepare to A Accept & C Carefully C Contro...

RosyPollyandMe

•4 months ago

8 Replies

Chronic Fatigue with PMR

Could anybody please clarify is it the inflammation related to PMR or is it the Steroids (Preds) that cause this very debilitating fatigue and brain fog?...

Could anybody please clarify is it the inflammation related to PMR or is it the ...

Mariemcdo

•4 months ago

6 Replies

How do we know when we are totally free from PMR

Hi, Is it when you have finally reduced to zero prednisone and can manage all previous tasks? I know this is a daft question but, as I am down to 5mg and...

Hi, Is it when you have finally reduced to zero prednisone and can manage all p...

Markandevie

•4 months ago

19 Replies

Zoledronate infusion?

I haven’t posted on here for ages but read the posts daily. I’ve been taking pred for 12 years now and am currently taking 3 mg daily. In December I was...

I haven’t posted on here for ages but read the posts daily. I’ve been taking pre...

Suet3942

•4 months ago

13 Replies

reducing prednisone

I am 10 days into taking Prednisone. I started on 15mg and was increased to 25mg after 5 days as still in pain. I have been advised to started reducing to 20mg...

I am 10 days into taking Prednisone. I started on 15mg and was increased to 25mg...

Gooner12

•4 months ago

9 Replies

Cancelled Blood Test

My 3 monthly blood test was cancelled due to the cyber attack at Guy’s Hospital. I am currently on 11mg Pred and 15mg Methotrexate once a week. I am told...

My 3 monthly blood test was cancelled due to the cyber attack at Guy’s Hospital....

Baner

•4 months ago

5 Replies

Advice please.

I started my PMR and GCA journey June and July 2018. I am down to 5 .5mg prednisolone. Over the last10 days, I have had Temple area discomfort, and niggly bits...

I started my PMR and GCA journey June and July 2018. I am down to 5 .5mg prednis...

pmrgcavictim

•4 months ago

8 Replies

Mood Change.

I’m currently 2 years into PMR journey. Just reduced to 6mg in last month. I think I have noticed a trend of a fall in mood before noticing physical symptoms...

I’m currently 2 years into PMR journey. Just reduced to 6mg in last month. I thi...

Flinders61

•4 months ago

7 Replies

After Surgery

Hi I have had a uni knee replacement 6 weeks ago since this I have been suffering with pain in every part of my body, is it possible to get a PMR flare after...

Hi I have had a uni knee replacement 6 weeks ago since this I have been sufferin...

_multistrada

•4 months ago

6 Replies

Advice re Tapering and Stressful Holiday to Japan

Hi lovely members, I’ve been more or less successfully tapering down to 7.5 / 7 mg of Prednisolone for GCA ( diagnosed last July). I am due to go to Japan...

Hi lovely members, I’ve been more or less successfully tapering down to 7.5 /...

Leafsong66

•4 months ago

10 Replies

Rheumy,TCZ hip pain and me!😱

Good morning good people,back again as am in limbo.Had all my checks at hospital last week,saw a registrar who examined me ( albeit briefly) ,and providing...

Good morning good people,back again as am in limbo.Had all my checks at hospital...

Angelsmummy

•4 months ago

26 Replies

Envy!

As I gaze out of my kitchen window over the downs at 4.15 a.m. I remember something a fitness-fanatic friend said recently and which I think should be passed...

As I gaze out of my kitchen window over the downs at 4.15 a.m. I remember someth...

random901

•4 months ago

5 Replies

Withdrawal from Prednisone

Can anyone say if taking Prednisone for 9 years is safe. Came off them slowly but have not been helped by doctors. Withdrawal symptoms muscle pains in legs and...

Can anyone say if taking Prednisone for 9 years is safe. Came off them slowly bu...

TowneleyDownTanner

•4 months ago

5 Replies

best hour to take pred

I’ve read somewhere it might be a good idea to take prednisone around 2am as inflammation usually sets in about 4am I have only taken for 3days but have found...

I’ve read somewhere it might be a good idea to take prednisone around 2am as inf...

Gotryit

•4 months ago

15 Replies

Synacthen test re Cortisol

I picked up a couple of pages on this but it is not complete. Does anyone have a complete copy I can download?

I picked up a couple of pages on this but it is not complete. Does anyone have ...

moconnolly

•4 months ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

Great Presentation Today

Feeling dispirited having had a flying start to meds, now regressing. Advice

Blood test interpretation

flare

Fingers Crossed

tests

Wife Has Similar Symptoms

Torn Rotator cuff

Newly diagnosed with PMR and thank you for all the info here

Appointment with Professor Dasgupta? Leg symptoms only.

Rheumatologist recommended in uk

Advice on liver and kidney results on latest blood test

Gnat bites.

Update to Advice Please.

GCA and strokes

PACE & KISS Mantras

Chronic Fatigue with PMR

How do we know when we are totally free from PMR

Zoledronate infusion?

reducing prednisone

Cancelled Blood Test

Advice please.

Mood Change.

After Surgery

Advice re Tapering and Stressful Holiday to Japan

Rheumy,TCZ hip pain and me!😱

Envy!

Withdrawal from Prednisone

best hour to take pred

Synacthen test re Cortisol

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