Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for June 2024

York meetup

A massive Thank You to Yvonne for organising the York meet up yesterday and for all your hard work and organising. You are very much appreciated. It was so...

A massive Thank You to Yvonne for organising the York meet up yesterday and for ...

UnicornDancer

•4 months ago

1 Reply

synacthen test

I’m to have a synacthen test next week. I am taking 5 mg of prednisolone daily and have been told to stop the pred 3days before the test. Will this be ok. As...

I’m to have a synacthen test next week. I am taking 5 mg of prednisolone daily ...

Creamtea

•4 months ago

14 Replies

Feeling rubbish again at 2.5mg prednisone

Hello, I’m hoping for advice again. I was diagnosed in March 2019 and have spent 5 years slowly tapering with a couple of flares. The last one was a few weeks...

Hello, I’m hoping for advice again. I was diagnosed in March 2019 and have spen...

HelenDaisy

•4 months ago

15 Replies

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Moonface

I was diagnosed with PMR at the end of November last year and have tapered from 15mg a day down to 6.5mg a day now without incident. I have been fortunate in...

I was diagnosed with PMR at the end of November last year and have tapered from ...

Yorick123

•4 months ago

10 Replies

shoulder pain on tapering after GCA flare

Hi everyone, well after flare of GCA and going back up to 40 mgs pred daily I felt really well and no symptoms but now down to 30 mgs I have shoulder and...

Hi everyone, well after flare of GCA and going back up to 40 mgs pred daily I fe...

Golfers1

•4 months ago

6 Replies

Research that may be of benefit to those of us with Gut disorders and also Autoimmune diseases involving the arteries. I wondered about GCA

https://www.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway Have not yet had the chance to read further...

https://www.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-resea...

SheffieldJane

•4 months ago

2 Replies

How to cope with workload

I was diagnosed with atypical PMR two and half years back. Being ill has disrupted my worklife seriously but I as I do freelance work from home I have sort of...

I was diagnosed with atypical PMR two and half years back. Being ill has disrupt...

Quintius

•4 months ago

41 Replies

in Denial?

Diagnosed in 2020 and started 15mg pred. It worked and I tapered - not perfectly - to stop in April this year. All seemed well then I began to get pain in my...

Diagnosed in 2020 and started 15mg pred. It worked and I tapered - not perfectly...

51Highland

•4 months ago

27 Replies

Searching for Posts

I seem to spend an inordinate amount of time searching for old posts on certain subjects and the reason is I can never find the Search Bar on this site! It's...

I seem to spend an inordinate amount of time searching for old posts on certain ...

tempusfugi

•4 months ago

14 Replies

Voltarol

Is it considered ok to use Voltarol cream when taking Pred? I am confused as to whether it's an NSAID. I am hoping to use it on what is supposedly an artritic...

Is it considered ok to use Voltarol cream when taking Pred? I am confused as to...

tempusfugi

•4 months ago

34 Replies

good Rheumy, better Rheumy, tapering & Leflunomide

A good news story. My Rheumy retired suddenly recently to my dismay as she listened etc, but her replacement is such a good communicator. Sent me a letter with...

A good news story. My Rheumy retired suddenly recently to my dismay as she liste...

Japsquar

•4 months ago

10 Replies

D&V what to do with prednisole

I came back from holiday Tuesday morning . Took prednisolone at 4 am. In the afternoon I started with D&V. It stopped in the evening .I took usual dose of...

I came back from holiday Tuesday morning . Took prednisolone at 4 am. In the aft...

Sheeplegs

•4 months ago

7 Replies

EC 1mg pred??

I have recently managed to taper to 4mg which means taking all plain tablets. I have had an increase in indigestion/slight heartburn since doing this. I have 3...

I have recently managed to taper to 4mg which means taking all plain tablets. I ...

LbHH

•4 months ago

10 Replies

GCA, adrenal fatigue, migraine or something else?

I’ve been doing brilliantly tapering. Got to 3mg without problems. Began a very slow taper to 2- using 3, 3, 2, 3, 3, 2 and now feel rotten. Had headache for...

I’ve been doing brilliantly tapering. Got to 3mg without problems. Began a very ...

CheshireBooth

•4 months ago

10 Replies

New person here...

My first post here... I'm a hotbed of autoimmune disorders: arthritis, PMR, Hashimoto's Thyroiditis, & Sjegren's. I've been dealing with pain most of my...

My first post here... I'm a hotbed of autoimmune disorders: arthritis, PMR, Hash...

79andCounting

•4 months ago

11 Replies

How long does Pred work? Can you top up the dose later in the day?

I flagged up that I am now taking 2/3rds of my dose around 2 -3 am and had noticed some very positive benefits in the morning. I take the 1/3rd at...

I flagged up that I am now taking 2/3rds of my dose around 2 -3 am and had noti...

Motida

•4 months ago

4 Replies

Side Effects

Has anybody had Oral Thrush side effect of Prednisone ? And how do you get rid of it without going to to the Drs for more medication. Thank you

Has anybody had Oral Thrush side effect of Prednisone ? And how do you get rid ...

budgies4

•4 months ago

18 Replies

cataract

Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem ,...

Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one f...

Greensleeves

•4 months ago

28 Replies

Gastro Resistant Prednisolone

Am on 4.5 mg Pred currently. If I ask for 2.5 mg to help make up my dose my GP prescribes Gastro Resistant pills. I think this is because for some reason...

Am on 4.5 mg Pred currently. If I ask for 2.5 mg to help make up my dose my GP ...

jaycee444

•4 months ago

7 Replies

Could this be PMR?

Hi there. I have been lurking in the background for a while. I have OA and in fact had both hips replaced-2014 and 2021 to great effect!! However for the past...

Hi there. I have been lurking in the background for a while. I have OA and in fa...

Claribel55

•4 months ago

14 Replies

Thank you to our volunteers!

It's volunteers' week this week and we want to thank all our volunteers who help across the charity. Here, on our forum, a big thank you to PMRpro and...

It's volunteers' week this week and we want to thank all our volunteers who help...

Fran_Benson

Partner•4 months ago

75 Replies

autoimmune left or right bias?

Adult Onset Stills Disease is categorised as autoimmune /auto inflammatory. Over the years I’ve developed several other AI conditions such as Interstitial...

Adult Onset Stills Disease is categorised as autoimmune /auto inflammatory. Ove...

Stills

•4 months ago

24 Replies

Update

Hi everyone, I promised to let you know any updates. I went to audiology and ENT yesterday, had a hearing test then seen a specialist nurse then a consultant....

Hi everyone, I promised to let you know any updates. I went to audiology and ENT...

Numptybrain

•4 months ago

18 Replies

PET CT Scan

I have had PMR since Feb 23 and had a PET CT scan today. Has anyone else had one of these? what was the outcome my blood markers have been high during the...

I have had PMR since Feb 23 and had a PET CT scan today. Has anyone else had one...

pmrdays

•4 months ago

24 Replies

PMRGCAuk Week Webinars - Next week and available for everyone

Hi everyone, it's PMRGCAuk Week next week and we are running three webinars throughout the week. One on exercise and activity with consultant physiotherapist,...

Hi everyone, it's PMRGCAuk Week next week and we are running three webinars thro...

Fran_Benson

Partner•4 months ago

5 Replies

Still waiting definitive diagnosis,second opinion this week

Following a rapid onset of symptoms , arms, neck, shoulders, thighs and posterior pain and stiffness, difficulty getting out of bed and dressing, awful...

Following a rapid onset of symptoms , arms, neck, shoulders, thighs and posterio...

Fatsiajaponica

•4 months ago

21 Replies

Support Group York

Do you live in Yorkshire and can get to McArthur Glen Designer Outlet in York. We meet upstairs tomorrow Wednesday 5th June in the food court 11-1pm next to...

Do you live in Yorkshire and can get to McArthur Glen Designer Outlet in York. W...

Estellemac

•4 months ago

11 Replies

GCA and Elevation

I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty...

I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I p...

Mooreby

•4 months ago

18 Replies

Split dose and Insomnia

Was taking 8mg pred in morning, but daytime fatigue was getting me down. Decided to split dose to see if it would help and it did. Take 5mg between 2am and...

Was taking 8mg pred in morning, but daytime fatigue was getting me down. Decided...

EnyaBlue

•4 months ago

8 Replies

Returning temporal headaches after stopping Tocilizumab, what to do ?

I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache)....

I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan onl...

ghost123uk

•4 months ago

62 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

York meetup

synacthen test

Feeling rubbish again at 2.5mg prednisone

Moonface

shoulder pain on tapering after GCA flare

Research that may be of benefit to those of us with Gut disorders and also Autoimmune diseases involving the arteries. I wondered about GCA

How to cope with workload

in Denial?

Searching for Posts

Voltarol

good Rheumy, better Rheumy, tapering & Leflunomide

D&V what to do with prednisole

EC 1mg pred??

GCA, adrenal fatigue, migraine or something else?

New person here...

How long does Pred work? Can you top up the dose later in the day?

Side Effects

cataract

Gastro Resistant Prednisolone

Could this be PMR?

Thank you to our volunteers!

autoimmune left or right bias?

Update

PET CT Scan

PMRGCAuk Week Webinars - Next week and available for everyone

Still waiting definitive diagnosis,second opinion this week

Support Group York

GCA and Elevation

Split dose and Insomnia

Returning temporal headaches after stopping Tocilizumab, what to do ?

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