Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,074 members • 39,820 posts

All posts for June 2024

Alendronic Acid

Hi I have been getting heartburn after taking Alendronic Acid recently. Am on weekly dose. Have been taking for 3 months. My Dexa scan came back normal and...

Hi I have been getting heartburn after taking Alendronic Acid recently. Am on w...

Havanahula

•4 months ago

33 Replies

back to archery!

Hi All Well after getting down to 10mg from 15 decided to try field Achery again ( this is shooting targets at unmarked distances over hilly wooded terrain!...

Hi All Well after getting down to 10mg from 15 decided to try field Achery agai...

Northernarcher

•4 months ago

3 Replies

Going Private

Ok I’ve gone and done it. I’ve booked a private consultation with Professor Rod Hughes which requires a trip to Chertsey from Bristol later this month. I’m...

Ok I’ve gone and done it. I’ve booked a private consultation with Professor Rod ...

Griggser

•4 months ago

15 Replies

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Difficulty walking. Would pred boost help.

Hello. I haven’t posted lately. I have been diligently tapering .5 mg every 5 to 6 weeks, previously on 9 years of pred with flare and set backs along the way...

Hello. I haven’t posted lately. I have been diligently tapering .5 mg every 5 to...

Nightingales

•4 months ago

20 Replies

Dr Michael Mosley

I am sure all of us who were helped by Michael and who enjoyed his programmes and his ebullient personality are very sad and upset to hear the news of his...

I am sure all of us who were helped by Michael and who enjoyed his programmes an...

Viveka

•4 months ago

9 Replies

TRURO, CORNWALL SUPPORT GROUP

For all those in the deep south west; we have our support group meeting at Truro Golf Club tomorrow 10th June from 2-4pm. We normally meet on the 2nd Monday...

For all those in the deep south west; we have our support group meeting at Truro...

Pollyanna16

•4 months ago

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Help with rheumy phone call tomo

Hi Everyone. 3 weeks ago, had GCA flare after perfect storm of Moderna jab, flu, reaching 2.75 tapering...extreme fatigue, headaches, nausia and accompanying...

Hi Everyone. 3 weeks ago, had GCA flare after perfect storm of Moderna jab, flu,...

Temoral

•4 months ago

7 Replies

dosage

I’m reading posts of most people having miraculous speedy recovery on prednisone I have been prescribed 15mg 3 days ago without any improvement at all -...

I’m reading posts of most people having miraculous speedy recovery on prednison...

Gotryit

•4 months ago

9 Replies

Is it GCA? Best next step?

Hi fabulous community - Mr PMR diagnosed with PMR about a month ago. Symptoms severe and included weight loss. Started 20mg of Pred 3 weeks ago. Spectacular...

Hi fabulous community - Mr PMR diagnosed with PMR about a month ago. Symptoms se...

MrsPMR

•4 months ago

20 Replies

Nycii

Anyone have experience of Alendronic acid .? Good or bad please ?

Nyci

•4 months ago

29 Replies

actemra, kevzara, tocillizumab, sarilumab

Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of...

Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of ac...

Kaaswinkel72

•4 months ago

10 Replies

Experience of Covid Vaccines and Adrenals

I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness,...

I know the covid vaccines are a hot topic here. I don’t know if mum’s experience...

RT18

•4 months ago

3 Replies

IM I DOING THIS RIGHT.🤔

Iam now down to 3. 5mg of prednisone. I have aches around my hips and across my lower body . I have been doing more than usual but it's still there on a lazy...

Iam now down to 3. 5mg of prednisone. I have aches around my hips and across my ...

rachelbell

•4 months ago

18 Replies

rituximab

any of you has personal or otherwise experiences with rituximab use in combination with prednison. Like many of us, I keep on “ flaring” when I diminish my...

any of you has personal or otherwise experiences with rituximab use in combinati...

Kaaswinkel72

•4 months ago

6 Replies

jaw pain

A few weeks ago I noticed that I couldn’t open my mouth as wide as I normally could without pain on the left side. Also, if I yawn and forget not to open it...

A few weeks ago I noticed that I couldn’t open my mouth as wide as I normally co...

Gaycreasey

•4 months ago

21 Replies

Ibuprofen Gel

In the erlier days of my PMR I remember being advised not to take Ibuprofen as a pain relief. Does that apply to the Gel as I have had a trip in the garden...

In the erlier days of my PMR I remember being advised not to take Ibuprofen as a...

Golf-1

•4 months ago

3 Replies

Alternating doses

I've been off & on Prednisone a few times in the past year while they tried to figure out whether I have PMR or RA. Finally decided on PMR, I was on 10 mg...

I've been off & on Prednisone a few times in the past year while they tried to f...

79andCounting

•4 months ago

9 Replies

Hello welcome to my recovery journey

Here I am at the start of my doagnosis of a condition I did not know until yesterday existed. PMR. I am female and 60, and ready to recover. Please feel...

Here I am at the start of my doagnosis of a condition I did not know until yeste...

Kindlreader

•4 months ago

4 Replies

Ditsy

just diagnosed with PMR 2 days ago - first dose of 15mg prednisone yesterday just wondering generally how long do they take to give relief as I when I woke up...

just diagnosed with PMR 2 days ago - first dose of 15mg prednisone yesterday jus...

Gotryit

•4 months ago

13 Replies

Hello from a recently diagnosed Person with PMR

Hi everyone, I am newly diagnosed with PMR. It's a bit of a shock on the one hand, but also a relief in a way to have a name for my symptoms. So really I am...

Hi everyone, I am newly diagnosed with PMR. It's a bit of a shock on the one han...

BuffyJack64

•4 months ago

19 Replies

Update on private second opinion this evening, advice re pred.

Finally have a diagnosis of PMR having seen a professor privately ( sad that this was necessary as goes against the grain for me), however, I was becoming...

Finally have a diagnosis of PMR having seen a professor privately ( sad that thi...

Fatsiajaponica

•4 months ago

41 Replies

CRP 4

Considering it was 73 when I started on pred 16 days ago I’m quite happy 😃 Symptoms not all gone but getting there. On 20mg pred.

Considering it was 73 when I started on pred 16 days ago I’m quite happy 😃 Sy...

NewPMR53

•4 months ago

2 Replies

Have I made a mistake

I posted last weekend about having lower back pain and being sick after taking my pred. Apologies for the long post. The pain in my lower back and side has...

I posted last weekend about having lower back pain and being sick after taking ...

Iloveholidays

•4 months ago

20 Replies

Just found this video on PMR

Hello Paul here from North Carolina, USA I just found an interesting new video on Youtube about PMR. Youtube. - Polymyalgia Rheumatica: What has changed...

Hello Paul here from North Carolina, USA I just found an interesting new video...

LucPaul

•4 months ago

32 Replies

Can PMR cause foot pain?

just as the tile says really. I haven’t been able to find anything conclusive about this on the web and so I wondered if anyone else had suffered from this....

just as the tile says really. I haven’t been able to find anything conclusive a...

CarnationLily

•4 months ago

27 Replies

Advice from you amazing ladies regarding adrenal fatigue whilst tapering.

I am just coming to the end of my four week taper following Dorset Lady seven week plan and for the last two days have had fatigue and aching all over my...

I am just coming to the end of my four week taper following Dorset Lady seven we...

Whippetygirl

•4 months ago

13 Replies

Update

Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I...

Good morning everyone. Still warm and breathing, was locked out of my account an...

EdithWales

•4 months ago

9 Replies

Breakthrough with the cause of IBD - may lead to similar discoveries with other autoimmune diseases?

Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's...

Just spotted this on my BBC News notifications. BBC News - Major cause of inflam...

Broseley

•4 months ago

3 Replies

Is it OK to take hydrolytes when you have PMR?

We live in Cyprus and are currently going through a heatwave with temperatures reaching 40C. I've had PMR since August 2020 and have been on 7.5mg of...

We live in Cyprus and are currently going through a heatwave with temperatures r...

Pr0jection

•4 months ago

6 Replies

Reducing steroids and adrenal symptoms

I’ve recently experienced symptoms which made me think of Pred-induced diabetes. In particular, my metabolism does not seem to adjust properly to food, with...

I’ve recently experienced symptoms which made me think of Pred-induced diabetes....

dmart7

•4 months ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

Alendronic Acid

back to archery!

Going Private

Difficulty walking. Would pred boost help.

Dr Michael Mosley

TRURO, CORNWALL SUPPORT GROUP

Help with rheumy phone call tomo

dosage

Is it GCA? Best next step?

Nycii

actemra, kevzara, tocillizumab, sarilumab

Experience of Covid Vaccines and Adrenals

IM I DOING THIS RIGHT.🤔

rituximab

jaw pain

Ibuprofen Gel

Alternating doses

Hello welcome to my recovery journey

Ditsy

Hello from a recently diagnosed Person with PMR

Update on private second opinion this evening, advice re pred.

CRP 4

Have I made a mistake

Just found this video on PMR

Can PMR cause foot pain?

Advice from you amazing ladies regarding adrenal fatigue whilst tapering.

Update

Breakthrough with the cause of IBD - may lead to similar discoveries with other autoimmune diseases?

Is it OK to take hydrolytes when you have PMR?

Reducing steroids and adrenal symptoms

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