Wife Has Similar Symptoms: I have had PMR 5 yrs. I... - PMRGCAuk

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Wife Has Similar Symptoms

DrRon profile image
17 Replies

I have had PMR 5 yrs. I enjoy good days now @ 4mg Pred daily plus 20mg Methotrexate per week.

2 wks ago my wife began having the same intense bone and surrounding tissue pain in all the customary PMR places; and worse in the morning until mid-day; lessening with some mobility. I can't stand to think she has PMR. Won't matter, she's got the pain. She has a schedule Dr. appointment June 11.24 and we'll soon have one person's medical opinion.

My question: does anyone know of conditions other than PMR that resemble it with pain and other symptoms. If so, what are the names of these conditions?

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DrRon profile image
DrRon
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17 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi,

Sorry to hear about your wife - maybe have a look at this - and see if any resonate -

medicalnewstoday.com/articl...

But if she has PMR at least you can guide her through it… please let us know. .

DrRon profile image
DrRon in reply toDorsetLady

thank you, it's helpful.

SnazzyD profile image
SnazzyD

Here is the UK’s National Institute for Care and Excellence list of differential diagnoses. It’s long but many are weeded out fairly quickly.

cks.nice.org.uk/topics/poly...

PMRpro profile image
PMRproAmbassador in reply toSnazzyD

No use to Ron - they don't let anyone outside the UK read them!

SnazzyD profile image
SnazzyD in reply toPMRpro

🙄

PMRpro profile image
PMRproAmbassador in reply toSnazzyD

Even me using my sign in for NICE!!!!!

DrRon profile image
DrRon in reply toPMRpro

PMRpro, just found that out by trying ... Thanks for attempt to help, SnazzyD

krillemy profile image
krillemy in reply toPMRpro

I do not understand? Why is that?

PMRpro profile image
PMRproAmbassador in reply tokrillemy

Because NICE is an official UK entity and for some reason think their utterings are too important to be seen by anyone outside the UK. So it blocks any attempt to view it that doesn't have a UK IP address. The Guidelines and other things are for UK application only so theoretically are of no interest to anyone outside the UK. It comes down to money I suspect - you are welcome to view them by paying an access fee of £124 or thereabouts. Bit of a pain for a doctor on holiday thinking they'd study for exams though!

Sophiestree profile image
Sophiestree in reply toPMRpro

would a VPN work? You can get free ones. I think NordVPN is a well known one.

PMRpro profile image
PMRproAmbassador in reply toSophiestree

Should do - at least temporarily, some sites work that out too!

krillemy profile image
krillemy in reply toPMRpro

Well... not something you see in other countries.. you would think that they would be proud of all the internet trafic to their site

PMRpro profile image
PMRproAmbassador

Sorry to hear that - PMR isn't the disease, it is the name for a set of symptoms which can also herald other disorders, especially some forms of inflammatory arthritis, as well as some nastier ones like a few cancers.

Here is a Medscape differential diagnosis list that you will be able to access:

emedicine.medscape.com/arti...

Most of the nasties will be ruled out by standard blood tests - and PMR is a diagnosis of exclusion in the early stages. PET-CT or MRI can be fairly conclusive if they look for the right things but they are rarely employed by primary care.

The rest you will be familiar with although every person has a different version of PMR and once on pred your wife may have a far easier journey than you have,

Give her our best wishes and know she will be welcomed here,

DrRon profile image
DrRon in reply toPMRpro

thanks PMRpro, the site and your words are helpful for us.

piglette profile image
piglette

I remember seeing a chart of PMR diagnoses a while back. All I can remember was that around 60% of PMR diagnoses were correct. There were other possibilities but the only ones I can remember were low vitamin D, fibromyalgia, rheumatoid arthritis and cancer.

AtopicGuy profile image
AtopicGuy

There are some other (often autoimmune) diseases that can mimic PMR symptoms. Many of them also come under rheumatology, so a good specialist can sort them out. A problem arises with the conditions that fall under neurology, because the muscle disfunction arises from auto-antibodies (contrast with immune-cell inflammation) attacking the nerves that control the muscles, rather than the muscles themselves. Myasthenia gravis is an example, as it can manifest as terrible fatigue with bilateral weakness in the back, neck, shoulders and/or limbs.

DrRon profile image
DrRon

Again I send a thank you note to you all, who take time to answer mine, and other people's queries, and give us room to tell our tales and sing our sadness, and we pay attention because it is clear that your voices sound from shared health experiences.

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