Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,072 members • 39,818 posts

All posts for June 2024

Discharged by rheumy!

I went to my appointment yesterday, full of tales of woe about all my various health problems this year which caused a delay in my tapering. I'm on half a mg...

I went to my appointment yesterday, full of tales of woe about all my various he...

Broseley

•4 months ago

59 Replies

Tapering

It is some time since I posted anything about my PMR journey, but want to share my recent tapering experience. I have been on prednisone for 4.5 years and...

It is some time since I posted anything about my PMR journey, but want to share ...

Kiwisufferer2019

•4 months ago

35 Replies

Is there a "right type" of MRI for diagnosis?

I don't have a diagnosis - PMR seems more likely, but Ankylosing Spondlyitis and some form of Vasculitis also seem possible. My rheumatologist has ordered an...

I don't have a diagnosis - PMR seems more likely, but Ankylosing Spondlyitis and...

MizDiana

•4 months ago

5 Replies

Want to take advantage of all our features? Just log in!

I'm off to Maine, down to .5mg pred and holding....

I've been on just .5mg since May 18 and so far, so good. I saw my rheumatologist on the 7th of this month, and we agreed that I would stay at this dosage...

I've been on just .5mg since May 18 and so far, so good. I saw my rheumatologis...

Grammy80

•4 months ago

24 Replies

Swollen leg and knee pain

I was diagnosed with PMR and GCA in June 2021, having had symptoms since about 2016. I hadn’t found this forum then so my pred tapering to 10mg from the...

I was diagnosed with PMR and GCA in June 2021, having had symptoms since about 2...

Guilder

•4 months ago

33 Replies

Benefits

Has anyone claimed benefits as a result of not being able to work due to PMR? I am considering it as I have not worked for 10 months because of PMR. I am not...

Has anyone claimed benefits as a result of not being able to work due to PMR? I ...

Toffeeboyblue

•4 months ago

8 Replies

pred plus methotrexate?

Tapered, slowly, to 3mg of Prednisolone.Stiff and achey legs and hips in the morning but gone by afternoon. Saw rheumatologist today who wants to increase pred...

Tapered, slowly, to 3mg of Prednisolone.Stiff and achey legs and hips in the mor...

Di1863

•4 months ago

9 Replies

ER visit severe vomiting and diarrhea,

Thanks everyone for your responses. Now I’m having the opposite problem-constipation. Discharge orders didn’t give much info on what to eat, no consult...

Thanks everyone for your responses. Now I’m having the opposite problem-co...

Mstiles

•4 months ago

6 Replies

Mtx and pantoprazol?

I really need to take some pantoprazole; however, it seems to not go well with MTX in particular. Before I started MTX (20 mg), I sometimes took pantoprazole...

I really need to take some pantoprazole; however, it seems to not go well with M...

krillemy

•4 months ago

4 Replies

Hike in T-Score, steroid induced. Mistake in previous post. I am on 10 mg Methotrexate as a steroid sparing drug

Sorry for error in last post

lkcreedon

•4 months ago

2 Replies

Hike in T-Score due to steroid use. Worrying.

Hi All, just yesterday I finally got results from my DEXA .scan which I had done on 3rd of April. My T Score was T-2.3 (osteopina). My last DEXA scan...

Hi All, just yesterday I finally got results from my DEXA .scan which I had don...

lkcreedon

•4 months ago

39 Replies

Advice re flare

Good Morning. I was diagnosed with pmr oct 23 and put on 15mg pred. Ive been slowly reducing..following a plan from here and was on 8mg about to take first...

Good Morning. I was diagnosed with pmr oct 23 and put on 15mg pred. Ive been sl...

Timek

•4 months ago

6 Replies

PMR since July 2018 and down to 1mg. Enter GCA

My Bio is pretty well up to date, until a week ago. Quick summary of things is: I'm ok, vision ok, diagnosed with GCA, and I've gone from 1mg (nearly...

My Bio is pretty well up to date, until a week ago. Quick summary of things is:...

pata63

•4 months ago

10 Replies

Confusing Lab Test Results

I had a recent PMR flare that necessitated my temporarily going up from the 5mg I had tapered down to to a much higher dose. 20mg for 2 weeks, followed by 15mg...

I had a recent PMR flare that necessitated my temporarily going up from the 5mg ...

Donna5658

•4 months ago

7 Replies

Flare or doing too much ?

Advice needed ! I have been reducing v smoothly , 0.5mg every 8 weeks with no issues. Energy levels picked up once I got to 3mgs. I have been able to do a 5...

Advice needed ! I have been reducing v smoothly , 0.5mg every 8 weeks with no is...

Jigsawlass

•4 months ago

14 Replies

Red Cell Distribution Width

Hi…my blood tests have been showing ‘normal’ fr Crp Esr …everything except a consistently high Red cell distribution width above 18 I have been diagnosed with...

Hi…my blood tests have been showing ‘normal’ fr Crp Esr …everything except a con...

Havanahula

•4 months ago

16 Replies

Once again… flare or no flare?

Hello wonderful people. In March/April I posted saying that I wasn’t sure I was flaring and I’m back to the same question again. I have developed aches in...

Hello wonderful people. In March/April I posted saying that I wasn’t sure I wa...

Burroughs123

•4 months ago

3 Replies

Sudden foot pain

Could sudden foot pain be a sign that I’m tapering too quickly? I was finally diagnosed with PMR last July having suffered with pain and stiffness since...

Could sudden foot pain be a sign that I’m tapering too quickly? I was finally di...

Nanatoo

•4 months ago

7 Replies

PMR/GCA Elevator Pitch

I’m 7 months into my pmr/gca experience and have yet to find a simple way to explain the condition conversationally. When friends and family, I usually say,...

I’m 7 months into my pmr/gca experience and have yet to find a simple way to exp...

PMRSkier

•4 months ago

57 Replies

Please share any experience of meds to try and prevent osteoporosis especially Zoledronic acid and Romosozumab

I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and...

I've recently had spinal or vertebral compression fractures and am now talking t...

tangocharlie

•4 months ago

97 Replies

ER visit vomiting and diarrhea and heartbeats

Addition to earlier post about ER, etc. Before the ER visit I I had been experiencing pounding heart after some regular activities. EKG didn’t...

Addition to earlier post about ER, etc. Before the ER visit I I had ...

Mstiles

•4 months ago

10 Replies

Early weeks Prednisone V Adrenaline question?

I would like to ask the experienced team on here if they have seen or investigated if there is a link between the initial “prednisone euphoria” while the...

I would like to ask the experienced team on here if they have seen or investigat...

RosyPollyandMe

•4 months ago

10 Replies

Alternative days taper

Hi all, I had an appointment with rheumi registrar yesterday. I have stayed on 5mg steroids for 3 months due to another flare. I have been advised to taper...

Hi all, I had an appointment with rheumi registrar yesterday. I have stayed on 5...

Lynlea

•4 months ago

8 Replies

Off meds: is 13 lucky?

Fingers crossed! After 13 years (7 yrs with PMR then added GCA for another 5) I am off all meds. Pred came off in 2020 and have been on just Actemra. Tapered...

Fingers crossed! After 13 years (7 yrs with PMR then added GCA for another 5) I...

PMR2011

•4 months ago

20 Replies

Post Sickness Advice Please!

Hi - two weeks ago I had a violent sickness attack with excruciating back pain. I was also coughing a lot. A virus with chest infection was diagnosed and I...

Hi - two weeks ago I had a violent sickness attack with excruciating back pain....

Thelmarina

•4 months ago

4 Replies

Covid, covid test and tapering

Very slow tapering (DL style and working well) currently at 5mg prednisolone. Just into my 3rd year PMR diagnosis, when I contracted covid. Staying put at 5 mg...

Very slow tapering (DL style and working well) currently at 5mg prednisolone. Ju...

waltztherapy

•4 months ago

14 Replies

Omeprazole side effect? Numb feeling in lips...

Morning all...yet another little niggle...the past few days I have sensed a sort of numbness or slight pins and needle fluttering in my lips and across...

Morning all...yet another little niggle...the past few days I have sensed a sort...

Temoral

•4 months ago

7 Replies

is it GCA ?

Diagnosed PMR Jan 2024. Pred at 20mg for 3 weeks . Headache and stiffness gone in a few days. Reduced to 15mg after 3 weeks then by 1mg each month and remained...

Diagnosed PMR Jan 2024. Pred at 20mg for 3 weeks . Headache and stiffness gone i...

Rubha

•4 months ago

5 Replies

decreasing pred

when I decrease dose 0.5 approx every 6 weeks. For first two weeks I take paracetamol to keep the wolf from the door as I get random pains not terrible like...

when I decrease dose 0.5 approx every 6 weeks. For first two weeks I take parace...

Uglow

•4 months ago

3 Replies

ER visit vomiting diarrhea severe dehydration, increase pred?

hello everyone, A week ago I woke up at night with severe vomiting for hours and diarrhea. Also chills and being cold. I eventually called 912 and was...

hello everyone, A week ago I woke up at night with severe vomiting for hour...

Mstiles

•4 months ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

Discharged by rheumy!

Tapering

Is there a "right type" of MRI for diagnosis?

I'm off to Maine, down to .5mg pred and holding....

Swollen leg and knee pain

Benefits

pred plus methotrexate?

ER visit severe vomiting and diarrhea,

Mtx and pantoprazol?

Hike in T-Score, steroid induced. Mistake in previous post. I am on 10 mg Methotrexate as a steroid sparing drug

Hike in T-Score due to steroid use. Worrying.

Advice re flare

PMR since July 2018 and down to 1mg. Enter GCA

Confusing Lab Test Results

Flare or doing too much ?

Red Cell Distribution Width

Once again… flare or no flare?

Sudden foot pain

PMR/GCA Elevator Pitch

Please share any experience of meds to try and prevent osteoporosis especially Zoledronic acid and Romosozumab

ER visit vomiting and diarrhea and heartbeats

Early weeks Prednisone V Adrenaline question?

Alternative days taper

Off meds: is 13 lucky?

Post Sickness Advice Please!

Covid, covid test and tapering

Omeprazole side effect? Numb feeling in lips...

is it GCA ?

decreasing pred

ER visit vomiting diarrhea severe dehydration, increase pred?

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